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Dissociative Identity Disorder can leave you feeling like much of your life is out of your hands, subject to the varying agendas of your alters. Last week, in the comments to my post Love and DID: Sometimes More is Less, reader Dana offered an insightful perspective on the potential payoffs of greater system awareness and communication:
What does anxiety management mean to you? Make time for the things that don't have a space in your life, yet. How often are you able to feel calm, well-rested, comfortable? What can you change to make those things a part of your everyday existence?
There's no cure for crazy. Sometimes I forget. My husband pointed it out to me once. "When he does well, you get your hopes up," he said. "And I think you let yourself have expectations that aren't realistic. It's almost like you still think someday he'll be cured." He was right, of course, but that did nothing to soften the blow.
The decision to disclose your dissociative identity disorder (DID) is a deeply personal one. Many, perhaps most, people with DID live in near silence about their disorder. They may tell only their family or no one at all. Some choose to share their dissociative identity disorder diagnosis not just with family but also friends. I belong to a smaller group of people who publicly say, "I have DID." What's comfortable for you may be unhealthy for someone else, and vice versa. With that in mind, what I offer you today isn't advice on whether or not to reveal your DID diagnosis, but a short list of DOs and DON'Ts - things to keep in mind when considering disclosure.
You say, "Don't worry, be happy." Oh! So that's totally how this anxiety thing works: I just won't worry. Why didn't I think of that before?! Next time my throat closes up and I can't leave the house, it won't be a problem... In my spare time I'll skydive, shoe shop and rave. Oh wait, I'm not Lindsay Lohan. And I'm afraid of heights, crowds and loud noises. Now I remember why I hate platitudes. They don't work.
Recently I was contacted by someone (let’s call her Ms. X) who wanted to end a friendship with a bipolar person and asked me how to do it with the least harm possible. I talked with Ms. X and it appears that her bipolar friend had been doing some very hurtful things. I asked Ms. X if she had talked to her friend about these things. Ms. X said that no, she hadn’t. So why is terminating a friendship preferable to talking about the problem?
Living with Dissociative Identity Disorder is, among other things, lonely. I often feel like I'm watching my life as it's lived by braver or more competent others. A situation presents itself and, without conscious choice, the deck that is my system of alters begins to shuffle. Some force outside my control determines, almost instantaneously, the card best suited for the circumstances; and the card plays until the shuffling begins again. On one hand, this identity alteration is precisely what has allowed me to find employment, make friends, and parent a child. On the other, it's what separates me from the world and makes intimacy an illusion that only rarely becomes my reality.
“Mom always liked you best!” Tommy Smothers made the lament famous; every sibling has likely heard it. But for those with mentally ill siblings—could there be some truth to it?
When looking for a partner we often bring a list of requirements or “wants” such as: must be faithful, must have stable employment, or must love dogs. Once you’ve found someone who catches your attention and meets your list of requirements, you begin the first wonderful lovey-dovey stage in a romantic relationship where you can’t get enough of each other and where your partner can do no wrong. It’s only when the love dust settles that you begin to see clearly and notice some of the more undesirable characteristics in him.
In my final video for HealthyPlace, I give definitive proof that I have ADHD and that hyper-focus can be an embarrassing thing.

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Taylor
I am 35yr old and have adhd. I didn't get my drivers license until I was 29. I have very poor sense of direction when driving and even when I have taken the same path to and from home several times. I can't go anywhere without my GPS. I even have great difficulties finding my car when I'm done at the shopping center. It seems to be connected to my adhd struggles.
Paula
I have a lifetime of trauma and BPD and depression & anxiety and i can really identify with everything you have said chronic low self esteem and believing i nothing worthwhile to contribute to any conversations in social situations, iv grown up believing i was a bad evil person who doesn’t deserve anything good that life has to offer, even when im with my family i again feel like im an outsider and all the above caused me to isolate for 16 years and this made my situation a million times worse when i came back into society only months ago, im absolutely filled with Paranoia and i dont feel safe around humans unless im with 2 people that i can sort of connect with but its not often this happens and on any given day im that terrible or feel unable to have a conversation with people i can retreat to isolation again which again makes me worse everytime, i feel like i suffer if im out with people and i suffer if i isolate, im just constantly in a state of anxiety and terror and it paralyzes me and makes me brain shut down where i cant even think of a sentence to strike up a conversation with people, it’s absolutely horrendous and all the negative things my head tells me about myself it’s disturbing! I wouldn’t talk to anyone else the way i talk to myself but i just dont know how to stop it its been so ingrained in me for at least 4 decades now and im 45 years old.. i keep hoping one day it will get easier, but my heads such a mess, honestly and im not a bad person, iv just had a lifetime of trauma since i was a little girl that it completely changed me, that I don’t even recognise myself and neither does my family or anyone who knew me, but i might have more serious mental health iv just never been able to get out the house to go to mental health assessments.. but i wish you all luck!
Anonymous
Hi I'm 15 and I have severe anger issues that I can't control. I don't know why I am like this but when I am super mad I like to punch myself in the head repeatedly until I pass out and I sometimes slam my head against the wall. I used to cut but I try not to. I would just take scissors and you know, snip snip. I think this started when I was younger- around 12 years old. I always thought about sh but now I actually do it. I wish I had never started because once you start you can't go back. It's like a one-way road. There is no way you are going back to where you started.
anon
I do not have a BPD diagnosis (or think I should), but I can relate to much of what you're saying. I had a parent who was bipolar and struggled with addiction and who ultimately died when I was in my twenties. My other parent was extremely religious and I was raised in a controlling and punitive environment. I am extremely codependent on my intimate partners but can simultaneously hold others at a distance when I feel overstimulated or just want to be alone. I too am very triggered by perceived abandonment and really struggle to communicate with others because I feel too much too intensely and cannot make others understand it..I don't always understand it. Despite all of this, I feel very triggered by this post?? I have a friend who also struggles in the same ways I do, but I suspect it is much worse for them. I notice they ALWAYS have plans even when they feel burned out because they are terrified of being alone. We used to be very codependent on one another but now I find myself keeping my distance. And sometimes for unrelated reasons, I have to cancel plans. OR I will state upfront that I tentatively agree to the plans but reserve the right to cancel if I don't feel up to it. I don't know if that makes me a bad friend or not; I have been in counseling for years learning how to hold space for both myself and others. And sometimes that looks like cancelling or rescheduling. I know that this is a trigger for my friend- they not so casually mention other "flaky" friends in conversation- but at what point am I supposed to cater to someone else's (sometimes irrational) needs at the expense of my own peace? Why do I have to give you a play by play of my thought process (and maybe a doctor's note) to get out of doing something? What's an acceptable reason to cancel? This friend recently encourages me to just say I don't want to do something (almost aggressively mind you), but when I do, I feel like I get the silent treatment or otherwise passive aggressive responses. And I am constantly hearing stories about this person's disappointment in other friends who cancel or are perceived as flaky. I want to give them space to process their feelings about cancelled plans, but sometimes I feel annoyed and overlooked. Like their pain is more valid or important than my own. I have not had the courage to talk to my friend about this but feel I need to soon or else I will continue to harbor resentment. Anyway, I know there's room for all of us to feel our feelings but it's so hard to navigate right now. I have been a caretaker in one form or another my entire life. I really need to take care of myself and not feel guilty about it. The end!
Mj. Bean
You're definitely not alone. My boyfriend has DID and more often times than not, we dont get throiugh the day without arguing or disagreeing at least once. I'm head over heels in love with "Super Max" which is who he basically is when he reaches this sort of "peak performance" and the "lesser" maxs' are the ones that can get downright insane. One talks like an 8 year old, another one acts like he's around 20 years old. I didn't have any idea he had this until we were 3 months in and i had already fallen hard for him. Most days he's in "annoyed/angry max mode" where he is literally the biggest control freak on the planet. Obsesses over silly things like "spilling" things and such. It can be exhausting but the violent max is the one that, while i rarely see him, he's still the only one i dread and have only seen a handful of times.

My point being, I'm right there with you. I hate the rollercoaster. I just want to live life without being in a state of constant fight or flight mode, only for his character to change and de-escalate and I fall for the person I fell for all over again.
Exhausting is a horrible word. The understatement of all understatements, if you will.

I wish there were better support groups for this kind of mental health condition.