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Desire For Remission

It’s devastating to get a diagnosis of bipolar disorder or another mental illness. It means many things to many people, but I know for me, it meant a lifetime condition and a lifetime of treatment. It honestly felt like a death sentence. But a bipolar diagnosis doesn’t just affect the person with bipolar disorder. A bipolar diagnosis can affect their family and friends, especially if the person with bipolar disorder is younger. It’s completely understandable for a parent to wonder if bipolar disorder is a death sentence. It’s completely understandable for a parent to wonder if his or her child is going to be okay.
OK, maybe it seems like I’m being a bit hard on commenters. I swear I’m not. I like people who comment and express their opinion, but sometimes their opinion spurs one of my own. This is one such comment: I’m bipolar, and I think we ALL should have to take a Dialectal Behavior Therapy course. The DBT course helps with coping skills, year class, and helps  . . . these skills work if you want them too. Here’s someone singing the praises of dialectical behavior therapy (DBT). She would certainly not be alone as many people find DBT to be helpful. The problem I have with this comment is the last bit, “these skills work if you want them too [sic].” So, this means that if the skills learned in DBT don’t work for someone it’s because they didn’t want them to? I don’t think so.
Last time, I wrote about the terrors of getting on new bipolar medication. Many people identified with this, including one commenter who said: Sounds all too familiar. I’ve been drug free for several years and seriously doubt that I will ever put myself through that trial and error program again . . . at least for me, that relief is not to be found at the bottom of an orange vial with a childproof cap. I hope you find something to relieve the pain. I also hope you consider the notion that you’re likely stronger and more resourceful than you think you are. Now, I’m not calling out this commenter for doing anything wrong. I have no problem with his comment, nor with him. However, I find this comment insulting. Not because the commenter meant it to be, but because it suggests that people who don’t take medication for bipolar disorder are “stronger and more resourceful” than those who do.
I have been on every bipolar medication you can name and likely a few you could not. I have been on more medication combinations than I can remember. I have spent years dealing with medication side effects. There is very little medication pain that I cannot tolerate. I have taken medications that have made me feel amazingly well and bipolar medications that have made me feel intolerably ill. I’ve seen treatment miracles and treatment devastations. And still, I feel nothing but terror when I think of taking new bipolar medication.
In one year I write over 100 blog articles for Breaking Bipolar. I’m honoured to say that many people have responded to this writing and it has spawned many great conversations. Popular topics this year ranged from self-harm to passing down of bipolar to your kids to the understanding of mental illness. Check out these popular articles you might have missed.
As I’ve mentioned, recently I’ve started volunteering for a local bipolar organization and what I do is give presentations to others. One part of the presentation is my “bipolar story.” It’s the story of my life before diagnosis, the process of treatment and whatnot. It’s long and, well, not that happy. But one of the things that stands out is that treatments have turned me around, but then they stopped working and new treatments had to be found. And these new treatments were extremely hard to find. In fact, successful treatments have been found through guessing as often as through any type of clinical judgement. And there’s a reason for this: bipolar disorder and bipolar disorder treatment are moving targets and our responses have to move with them.
On Monday, I wrote about the Faces of Mental Illness campaign run by the Canadian Alliance on Mental Illness and Mental Health. This campaign is part of the Mental Illness Awareness Week which is this week in Canada (next week in the U.S.). I like this campaign, and what’s more, given by the number of people who have read and shared the article, you like it too. People like hearing from other real people who have faced real mental illnesses and come out the other side to create whole and satisfying lives for themselves. And there’s absolutely nothing wrong with that. People find it helpful and hopeful and inspiring. But the campaign leaves out a huge segment of the mentally ill population. Where is the celebration of those who fight every day to beat their mental illness but don’t become published authors or start a non-profit?
This week is Mental Illness Awareness Week in Canada. (Mental Illness Awareness Week in the U.S. starts next week. Why the two countries couldn’t get together on this I’ll never know.) And in honour of this week, I thought I would feature the Mental Illness Awareness Week’s campaign – the Faces of Mental Illness. The Faces of Mental Illness Focuses on real people with real mental illnesses who have faced the worst and still found recovery. If you’re looking for some hope, these are the people who will give it to you.
Treatment for bipolar can be a beast. You try medication after medication after therapy after cocktail after doctor and so on. It’s exhausting. And at some point you stop. You just stop. Maybe some of your symptoms are controlled but not others. Maybe your symptoms are only partially controlled. Maybe you’re just too tired to fill another prescription. I understand, really. And this stopping can persist for weeks, months or even years. But the thing is, if you change nothing, then nothing will ever change.
Hi. My name is Natasha and I have bipolar disorder. In fact, I have had bipolar disorder for at least 14 years. And many of those years I spent not really getting better. Much to the chagrin of the doctors and those around me. After all, if I was taking pills, seeing a psychiatrist and psychologist, shouldn’t my wellness be just around the corner? Sometimes I felt pressured to just say “yes, I’m feeling better,” when that wasn’t the truth of the matter at all.