I've found hope is harmful. I know, the reflex is to disagree with this, but, at least in my case, hope is harmful. I recently found a bit of hope of ending a profound, debilitating depression. I knew feeling that hope was a mistake, but some part of my brain refused to listen to that. And sure enough, it turned out that hope was harmful.
Desire For Remission
I'm tired of disappointing my loved ones because my bipolar won't improve. I'm tired of looking at my doctor's face as I tell him that the new bipolar treatment isn't really making things better. Their disappointment becomes my disappointment. I feel disappointment in me too. Of course, When bipolar won't improve, disappointment is natural, but it's the disappointing my loved ones that twists the knife.
I consider bipolar disorder to by my main enemy most of the time and I’m trying to win against my bipolar disorder. But the word “try” sucks. I hate the word “try.” Yes, I’m “trying” to win against my bipolar disorder but all this “trying” is exhausting and full of failure.
I have spent a great many years with this bipolar disorder thing. I have spent a great many years dealing with it. I have spent a great many years suffering with it. I have spent a great many years with medication unsuccessfully controlling it. I have spent a great many years in pain. And when in an episode, for me it’s a depressive episode, I just want to know, “how many days until I get better? How many more days do I have to live in this agony?”
When I was first diagnosed, I went through 18 months of medication trials without success. I initially tried a bunch of antidepressants thanks to misdiagnosis and then I went through mood stabilizers when it was confirmed that I had bipolar disorder. And every medication was pretty much the same. I would take the drug, it would induce horrible side effects, I wouldn’t be able to tolerate the drug and then I would have to try something else. It was unadulterated hell. After 18 months of that, I went to my psychiatrist’s appointment, sat down and looked at my doctor as he threw his hands in the air and said, “I can’t help you. You’re no longer my patient.” My doctor had fired me.
While it seems hard to believe, some people want others to stay mentally ill and, indeed, sometimes even individuals themselves, choosing to maintain mental unwellness. You have the obvious example of people refusing medication and thus becoming very sick but there are other forces as well that can encourage a person to stay acutely, mentally ill.
It’s devastating to get a diagnosis of bipolar disorder or another mental illness. It means many things to many people, but I know for me, it meant a lifetime condition and a lifetime of treatment. It honestly felt like a death sentence. But a bipolar diagnosis doesn’t just affect the person with bipolar disorder. A bipolar diagnosis can affect their family and friends, especially if the person with bipolar disorder is younger. It’s completely understandable for a parent to wonder if bipolar disorder is a death sentence. It’s completely understandable for a parent to wonder if his or her child is going to be okay.
OK, maybe it seems like I’m being a bit hard on commenters. I swear I’m not. I like people who comment and express their opinion, but sometimes their opinion spurs one of my own. This is one such comment: I’m bipolar, and I think we ALL should have to take a Dialectal Behavior Therapy course. The DBT course helps with coping skills, year class, and helps . . . these skills work if you want them too. Here’s someone singing the praises of dialectical behavior therapy (DBT). She would certainly not be alone as many people find DBT to be helpful. The problem I have with this comment is the last bit, “these skills work if you want them too [sic].” So, this means that if the skills learned in DBT don’t work for someone it’s because they didn’t want them to? I don’t think so.
Last time, I wrote about the terrors of getting on new bipolar medication. Many people identified with this, including one commenter who said: Sounds all too familiar. I’ve been drug free for several years and seriously doubt that I will ever put myself through that trial and error program again . . . at least for me, that relief is not to be found at the bottom of an orange vial with a childproof cap. I hope you find something to relieve the pain. I also hope you consider the notion that you’re likely stronger and more resourceful than you think you are. Now, I’m not calling out this commenter for doing anything wrong. I have no problem with his comment, nor with him. However, I find this comment insulting. Not because the commenter meant it to be, but because it suggests that people who don’t take medication for bipolar disorder are “stronger and more resourceful” than those who do.
I have been on every bipolar medication you can name and likely a few you could not. I have been on more medication combinations than I can remember. I have spent years dealing with medication side effects. There is very little medication pain that I cannot tolerate. I have taken medications that have made me feel amazingly well and bipolar medications that have made me feel intolerably ill. I’ve seen treatment miracles and treatment devastations. And still, I feel nothing but terror when I think of taking new bipolar medication.