advertisement

Family and Mentally Ill Children

Finding gratitude when you or your family member lives with mental illness can seem so hard. The holidays especially can feel like a real season of loss for families with mental illness. While “normal families” seem to celebrate all the traditions that film and commercials dictate, families with mental illness cannot take on such busyness and chaos without negative repercussions or a mental health relapse. But, rather than see our alternate celebrations as a loss, finding gratitude during the holidays helps us see the better side of mental health struggles.
My family experiences sibling abuse because my son has disruptive mood dysregulation disorder (DMDD). This means his emotional responses are violently out of proportion to the trigger. Worse, the trigger is often his sister. If he perceives her to get anything positive that he does not, Armageddon breaks out. I don't know how siblings without mental illness interact. All I know is that the fighting that goes along with sibling abuse is exhausting.
Medication compliance for people taking psychiatric drugs is notoriously hit and miss. Because of that, the Food and Drug Administration (FDA) recently approved a form of aripiprazole (Abilify) that digitally tracks medication compliance in patients with schizophrenia, some forms of bipolar, and some cases of depression according to Psychiatric Times.1 A digital sensor in the pill tracks when the medication is ingested by sending a digital tracking signal to an arm patch. Information can be provided to patients and might be shared with families and providers. While this may be the first such drug approved by the FDA, it will not be the last. So, the question for mentally ill patients and their families is this: Is this a wonderful, new medication compliance tool, or is it a potentially dangerous invasion of privacy?
Maintaining mental health over the holidays can be a real challenge for teens and young adults with mental illness. With 64% of mentally ill people finding holidays stressful, according to a study by the National Alliance on Mental Illness (NAMI), it is important to find ways to stay healthy during the holidays. So read on for holiday mental health tips.
At 18, when our mentally ill children are no longer minors, it is important to encourage them to waive their privacy rights through the Health Insurance Portability and Accountability Act (HIPAA) and allow parents to participate on their mental health team. To assure that adult children waive their privacy rights, parents need to develop a relationship of trust.
You can support a bipolar teen as she works on problem behaviors, but you must be patient. I didn't have any more patience when my daughter's new counselor asked me, “What’s the one behavior you would like to work on with your daughter?” I was stunned, one behavior? Did she have any idea how erratic and out-of-control my teen’s behavior was as her bipolar disorder cycled from frantic highs to screaming lows? I quickly listed 10 desires. But, no, the therapist insisted that I choose only one. My first reaction was to choose a new therapist to support my bipolar teen daughter.
Several weeks ago, another blogger triggered a heated discussion on a minor’s rights to mental health privacy when they suffer from mental illness. Readers chastised the author for disclosing too much information about her child. And that made me ask: where is the line when it comes to minor's mental health privacy.
For two years I refused to even consider electroconvulsive therapy (ECT) for my severely depressed daughter. After all, I saw those 1950s movies—I saw those patients emerge zombie-like with no memory. But then my daughter’s life became so bleak we had no choice but to try electroconvulsive therapy, and I’ve kicked myself for letting her suffer so long.
According to our emergency plan for mental health crises, I had to call the police. After melting down for an hour, my daughter with bipolar disorder had locked herself in the bathroom threatening to kill herself. Knowing the signs of suicide, my daughter and I (with the help of her therapist) had created a safety contract—she violated it by locking herself away from me—I had to call according to the emergency plan for mental health crises.
Siblings of a child with mental illness don't have it easy. Managing children is a balancing act. Throw in mental illness, and that balance disappears. Sadly, this doesn't usually favor the child without the mental illness. I have many fears for my younger daughter who often lives in the shadow of her brother's behavior disorder. I'm betting many parents like me have the same fears for the siblings of a child with mental illness.