A diagnosis of mental illness can be shocking for both the patient and their loved ones and, unfortunately, lead to a lack of support. Prior to my husband’s schizophrenia diagnosis, I held a skewed view of mental illness believed the stigma surrounding it. After his diagnosis, I repeatedly asked myself why it couldn’t be something more seemingly straightforward, such as anxiety or depression. I learned to accept his illness over time, but it is difficult when others are not able to do the same. The lack of support we've been shown in our struggle hurts.
Family Experience with Mental Illness
Mental health advocacy for a loved one fights the stigma that exists in the most unlikely places. The past few weeks were quite overwhelming. Following a stay in a psychiatric ward, my husband was released. We dealt with multiple issues during that stay, including poor psychiatric care and a bizarre meeting with a highly unethical psychiatrist to discuss said care. In short, be aware that psychiatric hospitalization, while very important, also may lend itself to abuse of power. Involve yourself in your loved one's care because mental health advocacy for your loved one is crucial.
This post was particularly difficult for me to write because mental health hospitalization is not easy to talk about thanks to mental health hospitalization stigma. This stigma is profound, and both the stigma and the hospitalization itself places great strain on both the individual requiring treatment and their loved ones. I struggled with what to write, who to write it for, and if I should even post at all. If you know me or have read my page, you will know that I write for HealthyPlace because my husband has a mental illness. He has a diagnosis of schizophrenia. He also writes for HealthyPlace as a coauthor of "Creative Schizophrenia." Since his last hospitalization, we moved halfway across the country, had our third child, bought a house to renovate, found good jobs, and learned to work through his minor relapses. A couple of days ago, his condition deteriorated. He suffered a significant relapse and displayed signs of dealing with a significant psychotic episode. Even though I blog about coping with a family member's mental illness, I dreaded what came next and the response from those around us. As I drove him to the hospital, I felt the sting of stigma over his mental health hospitalization.
Emotional validation counteracts the lack of stability that may accompany living with a family member suffering from mental illness. Indeed, that lack of stability is challenging to endure. My husband and I usually live day to day or week to week without knowing what our future might hold. Yet, the best way to cope with this instability is to work together and focus on emotional validation.
Caregiver mental health is important. The last couple of weeks were quite a struggle for me. Maybe this was related to the constant speed of life or the change in seasons. I'm not sure, but as a spouse to someone with mental illness, I take on extra responsibilities and my mental health as a caregiver comes into play.
Recently I was asked how I cope with caring for a partner with mental illness. Do I cope day by day, hour by hour, minute by minute, or does it vary? What a complicated question.
Mental illness can impact a family in many ways, and the children of parents with mental illness need loving support. Children are very sensitive and sometimes clue into differences in behavior that adults miss. As adults, we are often caught up with other concerns: our careers, finances or the latest Netflix series, to name a few. We sometimes forget to pay attention to those around us and may overlook subtle changes. Children, on the other hand, notice everything. I say this from experience: children of parents with mental illness see and feel all of it.
When my first son was stillborn, I had no idea how to live with grief while balancing my mental illness and my family (Complicated Grief and Bipolar After the Loss of a Loved One). But after having two more amazing children with a husband who continues to stand by my side, we've learned how to live with grief and my mental illness. Nine years after we said goodbye to our first son, I have learned how to grieve while continuing to care for my mental illness and enjoy my family.
When you have bipolar, grieving the death of a loved one can be complicated and downright dangerous (Complicated Grief, PTSD, and Your Brain). Since the stillbirth of my son almost nine years ago, I continue to learn how to cope with this deep loss and remain mentally healthy as I care for my bipolar disorder. Complicated grief with bipolar after the death of a loved one is not an easy thing.
Keeping a marriage together while you balance life transitions with mental illness can feel impossible. It's taken my husband and me almost 16 years to anticipate and manage transitions in life. After many missteps, we have learned a few techniques that help our marriage with mental illness survive life's transitions (Why Is Even Good Change Sometimes So Hard?).