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Complex PTSD and Misdiagnosis: It Happens More Than You Know

May 9, 2019 Traci Powell

Complex posttraumatic stress disorder (PTSD) misdiagnosis happens out of ignorance. Although many people are now aware of the prevalence of sexual abuse, but not nearly enough people are aware of the lifelong effects of the abuse. Unfortunately, this includes some mental health professionals who can end up missing the diagnosis of complex posttraumatic stress disorder (PTSD) and instead give the person a misdiagnosis. 

I have witnessed far too many times what happens when sexual abuse survivors are misdiagnosed with borderline personality disorder (BPD), when in fact they are living with complex PTSD. The misdiagnosis perpetuates the survivor’s suffering because misdiagnosis results in ineffective treatment. I have also seen the tremendous amount of healing that occurs when the same survivor finally receives the proper diagnosis of complex PTSD. 

It took me years to finally work up the courage to seek out a professional to help me overcome my traumatic childhood. The first psychotherapist I went to advertised that he was trauma-informed, so I thought it would be a good fit. I confided in him and reported my symptoms, including severe anxiety and depression. In return, I was told that I needed a mood-stabilizing drug and that it was looking like I had BPD. I was left that office very frustrated, feeling as though he didn't truly listen to me and try to understand what I was dealing with, but instead jumped to a diagnosis. 

After trying the drugs and feeling much worse, a friend convinced me to try another therapist. I did and this time was much different. She took her time getting to know me for weeks before she suggested any diagnosis, and when she finally did, it was complex PTSD. As she explained what it is to me, I sobbed. Finally, someone understood me and, even more, I finally understood myself.

How Complex PTSD Is Misdiagnosed

People who have survived complex trauma, especially the trauma of sexual abuse, often display similar symptoms as those who live with BPD. Common symptoms include severe depression, mood swings, anger, extreme feelings of loneliness and anxiety. Those who live with these symptoms can be seen as having difficulty regulating their emotions. 

Women are at increased risk of receiving a misdiagnosis, as we tend to express ourselves more emotionally than men. Some professionals see being emotional as unstable and therefore a reason to support the diagnosis of BPD. However, research shows that BPD can be inherited,1 however complex PTSD is the result of extended exposure to traumatic events,2 especially in childhood.

Living through a childhood in which your innocence was stolen by heinous acts and learning to accept no one cared enough to protect you the way you should have been protected is enough to make anyone emotional. I think we have earned the right to be a little angry and sad about what happened. 

Learning to balance those horrible feelings with allowing ourselves to actually feel some happiness and joy in life today doesn’t make us unstable. It makes us incredibly brave because the fact is there are no highs and lows when it comes to living with complex PTSD from sexual abuse. There are only lows that you want to give into every day, but we fight not to let it take us down and rise above as much as we can.

Avoiding Misdiagnosis with Complex PTSD

Complex PTSD is a very complicated thing to deal with, but with proper support and guidance, healing can happen. When it is misdiagnosed, you can be led in the wrong direction, keeping you from appropriate treatment that will help manage the effects of your trauma.

We need more mental health professionals who understand the impact of childhood trauma on adults, but for now, there are things you can do to ensure you are receiving a proper diagnosis:

  1. Seek a trauma-informed therapist.
  2. Ask the therapist questions about his or her experience specifically treating childhood trauma. A therapist can be trauma-informed and work mostly with people who lived through a single traumatic event in adulthood. You want to know he or she understands the impacts of childhood trauma and prolonged exposure to traumatic events.
  3. Ask about the therapist's understanding of complex PTSD or if he or she has even heard of it.
  4. Finally, if you start working with a therapist and begin to feel he or she is just not hearing you or understanding, know that it’s okay to seek a different therapist, especially if you’ve been given a diagnosis you feel doesn’t fit with what you’re dealing with. 

Sources

  1. The National Institute of Mental Health, "Borderline Personality Disorder." May 2019.
  2. Tracy, N., "What is Complex PTSD (C-PTSD)?" HealthyPlace, February 2016.

APA Reference
Powell, T. (2019, May 9). Complex PTSD and Misdiagnosis: It Happens More Than You Know, HealthyPlace. Retrieved on 2019, September 21 from https://www.healthyplace.com/blogs/traumaptsdblog/2019/5/complex-ptsd-and-misdiagnosis-it-happens-more-than-you-know



Author: Traci Powell

Find Traci on TwitterFacebook and on her blog.

May, 21 2019 at 8:55 am
Hi Kyra,

I'm so happy you were able to get the help that you needed! It can be hard finding the right therapist who really understands.
Kyra
says:
May, 16 2019 at 4:54 pm
Thank you so much for this great article. It’s so validating as a fellow survivor of ongoing, childhood sexual abuse.
I was lucky enough to get a great therapist the first time around who properly diagnosed me with PTSD. (I much later became informed about CPTSD which totally captures it perfectly.).

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