Self-Help Clearinghouses, Non-Profits For Illnesses and Disorders

HealthyPlace.com
Information & Referral Resources

Just a note: These are resources that we have come across that MAY! prove helpful to you. Please understand, we ARE NOT recommending or endorsing any of them. It is up to you to determine if they offer something you need and whether or not it is appropriate for your situation.

Non-Profit Groups for Illnesses & Disorders
Government Agencies

AASK America/Aid to Adoption of Special Kids (800) 232-2751

American Association of Kidney Patients (800) 749-2257

American Council of the Blind (800) 424-8666

American Diabetes Association, Inc. (800) 232-3472

American Kidney Fund, Inc. (800) 638-8299

The American Liver Foundation (800) 223-0179

American Parkinson Disease Association (800) 223-2732

AT&T National Special Needs Center (800) 233-1222

AT&T National Special Needs Center (800) 833-3232 (TDD)

Better Hearing Institute (800) 327-9355

Blind Children's Center (800) 222-3566

Blinded Veterans Association (800) 669-7079

BRS Information Technologies (800) 955-0906

Captioned Films/Video for the Deaf Program (800) 237-6213

Center for Rehabilitation Technology (800) 726-9119

Center for Special Education Technology (800) 873-8255

Children's Hospice International (800) 242-4453

Cooley's Anemia Foundation, Inc. (800) 221-3571, (800) 522-7222

The Deafness Research Foundation (800) 535-3323

"Dial A Hearing Screening Test" (800) 222-3277, (800) 345-3277, (800) 334-2564

The EAR Foundation (800) 545-4327

Epilepsy Foundation of America (800) 332-1000

Epilepsy Foundation of America (800) 332-4050

The Family Survival Project (800) 445-8106

The Feingold Association of the United States (800) 321-3287

HEALTHSOUTH Rehabilitation Corporation (800) 768-0018

Hearing Information Center (800) 622-3277

Higher Education and Adult Training for People with Handicaps Resource Center (800) 544-3284

HUD User (800) 245-2691

Human Growth Foundation (800) 451-6434

IBM National Support Center for Persons with Disabilities (800) 426-2133

Job Accommodation Network (800) 526-7245, (800) 526-4698

LINC Resources, Inc. (800) 772-7372

National Alliance of Blind Students (800) 424-8666

National Association for Hearing and Speech Action (800) 638-8255

National Association for Parents of the Visually Impaired (800) 562-6265

National Audiovisual Center (800) 638-1300

National Autism Hotline (304) 525-8014

National Center for Research in Vocational Education (800) 762-4093

National Center for Stuttering (800) 221-2483

National Center for Youth with Disability (800) 333-6293

National Down Syndrome Congress (800) 232-6372

National Down Syndrome Society (800) 221-4602

National Easter Seal Society (800) 221-6827

The National Foundation for Illeitis and Colitis (800) 343-3637

National Head Injury Foundation, Inc. (800) 444-6443

National Headache Foundation (800) 843-2256, (800) 523-8858

National Hearing Aid Society (800) 521-5247

National Hospice Organization (800) 658-8898

National Information Center for Children and Youth with Disabilities 1-800-695-0285 (V/TTY), (202) 884-8200 (V/TTY)

National Information Clearinghouse for Infants with Disabilities and Life-threatening Conditions
(800) 922-1107, (800) 922-9234

National Information System for Vietnam Veterans and their Children (800) 922-1107,
(800) 922-9234

National Mental Health Association (800) 969-6642

National Multiple Sclerosis Society (800) 624-8236

National Neurofibromatosis Foundation (800) 323-7938

National Parkinson Foundation (800) 327-4545, (800) 433-7022

National Rehabilitation Information Center (800) 346-2742

National Retinitis Pigmentosa Foundation (800) 638-2300

National Society to Prevent Blindness (800) 221-3004

National Spinal Cord Injury Association (800) 962-9629

National Tuberous Sclerosis Association, Inc. (800) 225-6872

Office for Civil Rights, U.S. Department of Health and Human Services (800) 368-1019

Parkinson's Disease Foundation, Inc. (800) 457-6676

Parkinson's Educational Program (800) 344-7872

PsychINFO (800) 336-4980

RP Foundation Fighting Blindness (800) 638-2300

Social Security Administration (800) 772-1213, (800) 234-5772
Medicare (800) 638-6833

Stuttering Resource Foundation (800) 232-4775

Technical Aids and Assistance for the Disabled Center (800) 346-2939

Tele-Consumer Hotline (800) 332-1124

TRIPOD GRAPEVINE (800) 352-8888, (800) 287-4763

United Cerebral Palsy Associations, Inc. (800) 872-5827

United Leukodystrophy Foundation (800) 728-5483

VISION Foundation, Inc. (800) 852-3029

Visiting Nurse Association of America (800) 426-2547

Work & Family Clearinghouse - Women's Bureau 800-827-5335, 202-219-4486

Back up to: Non-Profits & Gov't. Agencies

"For More Info" by Subject-Telephone List:

AGING

National Council on Aging
800-424-9046

National Institute on Aging Information Center
800-222-2225

AIDS

National Association of People with AIDS
202-898-0414.

CDC National AIDS Hotline
800-342-2437, 800-458-5231, 800-344-7432 (Spanish)

National AIDS Information Clearinghouse
800-458-5231

AIDS Clinical Trials Info Service
800-874-2572

HIV/AIDS Treatment Information Service
800-448-0440

Teen AIDS Line
800-234-TEEN (Mon-Fri) or 800-440-TEEN (weekends)

ALCOHOL

American Council on Alcoholism
800-527-5344, (410)889-0100

National Clearinghouse for Alcohol and Drug Information
800-729-6686, (301)468-2600

National Council on Alcoholism and Drug Dependence
800-622-2255

National Council on Alcohol and Drugs
800-475-HOPE

ALZHEIMER'S DISEASE

Alzheimer's Association
800-272-3900.

Alzheimer's Disease Association
800-621-0379, 800-572-6037

Alzheimer's Disease Education and Referral Center
800-438-4380

AMYOTROPHIC LATERAL SCLEROSIS (Lou Gehrig's disease) ALS Association
800-782-4747

ARTHRITIS

Arthritis Foundation
800-283-7800

CANCER

American Cancer Society
800-227-2345

National Alliance of Breast Cancer Organizations (NABCO)
1-212-719-0154

Y-Me Breast Cancer Support Program
800-221-2141

Candle lighters Childhood Cancer Foundation
800-366-2223

Cancer Information Service
(800) 422-6237

The Wellness Community
301-314-2555

American Institute for Cancer Research Nutrition Hotline
800-843-8114

CEREBRAL PALSY

United Cerebral Palsy Association
800-872-5827

CHRONIC PAIN

American Chronic Pain Association
1-916/632-0922.

CREDIT COUNSELING

Consumer Credit Counseling Services
800-388-2227

CYSTIC FIBROSIS

Cystic Fibrosis Foundation
800-344-4823

DEPRESSION

National Foundation for Depressive Illness
Recorded announcement of the symptoms of depression and how to obtain help
800-239-1295 (24 hrs), 800-248-4344

National Depressive & Manic-Depressive Association
1-800-826-3632.

Depression Awareness
800-421-4211

DIABETES

American Diabetes Association
1-800-342-2383.

Juvenile Diabetes Foundation
800-223-1138

DOMESTIC VIOLENCE

National Domestic Violence Hotline
Info & Referrals for women who are abused verbally, mentally or physically.
1-800-799-SAFE (24 hrs)

DOWN'S SYNDROME

National Down's Syndrome Society
800-221-4602

National Down's Syndrome Congress
800-232-6372

DRUG ABUSE

National Council on Alcohol and Drug Dependency
800-622-2255

National Council on Alcohol and Drugs
800-475-HOPE

National Clearinghouse for Alcohol and Drug Information
800-487-4889 or (301)230-2867

800-COCAINE
800-262-2463

888-MARIJUANA
888-627-4582

EATING DISORDERS

1-858-481-1515
National Eating Disorder Referral and Information Center
International treatment referrals and prevention information edreferral@edreferral.com

1-800-931-2237
National Eating Disorders Association
International treatment referrals and information

4Therapy.com Network
National database of thousands of mental health professionals including psychiatrists, psychologists, social workers, marriage and family therapists, and pastoral counselors.

1-847-831-3438
Anorexia Nervosa and Associate Disorders (ANAD)
Referrals to treatment and Information

1-617-558-1881
Massachusetts Eating Disorder Association, Inc Helpline
Staffed by trained/supervised individuals.
M-Friday 9:30-5:00pm.
Wednesday evenings until 8:00pm

Adult Helpline: 011-44-8456-341414
Youthline: 011-44-8456-347650
Eating Disorders Association (UK)
Adult Helpline: (open 8:30 to 20:30 weekdays)
Youthline: (open 16:00 to 18:30 weekdays)

1-314-588-1683
Bulimia and Self-Help Hotline
(24 hours crisis line)

EPILEPSY

Epilepsy Foundation of America
1-800-332-1000.

GAMBLING

National Council on Compulsive Gambling
800-522-4700

GAY & LESBIANS

National Gay & Lesbian Hotline
Support & counseling for gay & lesbian teenagers.
1-800-347-TEEN (Thurs.-Sun., 7 pm-11:45 pm ET)

Gay and Lesbian National Hotline
888-843-4564 or (212)633-7492

GRIEF & LOSS

Grief Recovery Institute
800-445-4808

HEALTH

Civitex
Info on a broad range of problems (alcoholism, homelessness, family problems).
1-800-223-6004 (day)

NIS
Illnesses; support groups, education, treatments, community services, financial aid, advocacy, adoption services.
1-800-922-9234

National Health Info. Center
Info & Referral to support groups, prof. societies, government agencies, publications.
1-800-336-4797

Rural Information Center Health Service
Health service referrals in rural areas.
800-633-7701

HEART DISEASE

Mended Hearts
1-800-242-8721, Ext. 1442.

HOMOSEXUALITY

Gay and Lesbian National Hotline
888-843-4564 or (212)633-7492

HOSPICE CARE

Hospice Education Institute
Information and referral service.
800-331-1620

Children's Hospice Internation
800-242-4453

IMPOTENCE

Impotence Information Center
800-843-4315 (impotence information)
800-543-9632 (prostate information)

KIDNEY DISEASE / HEMODIALYSIS

American Association of Kidney Patients
1-800-749-2257.

LIVER DISEASE

American Liver Foundation
1-800-223-0179.

LUPUS

The American Lupus Society
1-800-331-1802.

MENTAL HEALTH

National Clearinghouse Family Support/Children's Mental Health
1-800-654-1247 (24 hrs)

National Alliance for the Mentally Ill
1-800-950-6264.

MULTIPLE SCLEROSIS

Multiple Sclerosis Association of America
1-800-532-7667

OBSESSIVE-COMPULSIVE DISORDER

National OCD Information Hotline
800-NEWS-4-OCD

PARKINSON'S DISEASE

American Parkinson Disease Association
800-223-2732.

PAIN

National Chronic Pain Outreach Association
Telephone: 301-652-4948

PREGNANCY

Planned Parenthood
800-230-7526

Pregnancy Hotline
800-848-5683

National Adoption Center
800-862-3678

RARE DISORDERS

National Organization for Rare Disorders [NORD]
Info. & networking for persons with rare disorders; literature.
1-800-999-6673 (day)

National Information Center for Orphan Drugs & Rare Diseases
Referrals to support groups, health centers; services for orphan drugs.
1-800-456-3503 (day)

Office of Orphan Products Development
Answers questions about drugs used for illnesses affecting fewer than 200,000 Americans.
Also provides referrals to pharmaceutical companies supplying orphan drugs.
800-300-7469

American Leprosy Missions
800-543-3135

Batten Disease Support
800-448-4570

Cooley's Anemia Foundation
800-522-7222

Histiocytosis Association
800-548-2758

National Lymphedemia Network
800-541-3259

National Neurofibromatosis Foundation
800-323-7938

National Reye's Syndrome Foundation
800-233-7393

National Tuberous Sclerosis Association
800-225-6872

Sickle Cell Disease Association of America
800-421-8453

Spina Bifida Association of America
800-621-3141

Sturge-Weber Foundation
800-627-5482

Tourette's Syndrome Foundation
800-237-0717

United Scleroderma Foundation
800-722-4673

SELF-INJURY/SELF-ABUSE

SAFE (Self-Abuse Finally Ends) Alternative Information Line
800-DONT-CUT

SEXUALLY TRANSMITTED DISEASES

Center for Disease Control-National STD Hotline
800-227-8922

SUDDEN INFANT DEATH SYNDROME (SIDS)

SIDS Alliance
800-221-7437

American SIDS Institute
800-232-7437

SPINAL CORD INJURY & PARALYSIS

National Spinal Cord Injury Association
800-962-9629

American Paralysis Association
800-225-0292

National Rehabilitation Information Center
800-346-2742

STROKE

American Heart Association Stroke Connection
800-553-6321.

STUTTERING

National Center for Stuttering
800-221-2483

Stuttering Foundation of America
800-992-9392

SUBSTANCE ABUSE/RECOVERY

Al-Anon Family Group Headquarters, Inc. (800) 356-9996
Alcoholism and Drug Treatment Addiction Center (800) 383-4357
American Council on Alcoholism (800) 527-5344
800 Cocaine (800) 262-2463
"Just Say No" International (800) 258-2766
The National Clearinghouse for Alcohol and Drug Information (800) 729-6686
National Drug Treatment Referral and Information Hotline (800) 662-4357

WOMEN'S HEALTH INFO

PMS Access
Recorded info line on premenstrual syndrome. Referrals to local doctors.
800-992-3636

Endometriosis Association
Recorded info line.
800-992-3636

Back up to: Non-Profits & Gov't. Agencies, Info by Topic Telephone List

For problems, issues or illnesses not listed above, contact the following:

American Self-Help Clearinghouse
1-201/625-7101

National Self-Help Clearinghouse City University of New York Graduate Center
1-212/354-8525

National Mental Health Consumer's Self-Help Clearinghouse
1-800/553-4539

Self Help Clearinghouses & Information Help lines

For help in finding or forming a member-run Mutual Aid Self-Help group for any type of illness, disability, addiction, bereavement situation, mental health, parenting or other stressful life problem, there are self-help clearinghouses and information help lines in the U.S. and around the world:

Arizona
(602) 231-0868

Arkansas
(501) 932-5555 (info on groups only)

California
San Diego 619-275-0607
San Fancisco 415-921-4044
Sacramento 916-368-3100
Davis 916-756-8181

Connecticut
(203) 789-7645

Illinois
(312) 368-9070

Indiana
(616) 925-0594

Iowa
1-800-952-4777 (in Iowa) (515) 576-5870

Kansas
1-800-445-0116 (in KS) (316) 689-3843

Massachusetts
(413) 545-2313

Michigan
1-800-777-5556 (in MI) (517) 484-7373

Missouri
Kansas City (816) 472-HELP
St. Louis (314) 773-1399

Nebraska
(402) 476-9668

New Hampshire
1-800-852-3388 (information on groups only)

New Jersey
1-800-FOR-M.A.S.H. (in NJ) (201) 625-9565

New York
New York City
(212) 586-5770
Westchester
(914) 949-0788, ext. 237

North Carolina
(704) 331-9500

Ohio
Dayton area (513) 225-3004
Toledo area (419) 475-4449

Oregon
Portland area (503) 222-5555 (information on groups only)

Pennsylvania
Pittsburgh area (412) 261-5363
Scranton area (717) 961-1234

South Carolina
(803) 791-9227

Tennessee
Knoxville area (615) 584-6736
Memphis area (901) 323-0633

Texas
(512) 454-3706

Utah
Salt Lake City (801)978-3333 (information on groups only)

Washington, D.C. (metro area)
(703) 941-LINK

For information on any national U.S. group, or for those interested in starting new national support networks:

American Self-Help Clearinghouse
Its latest edition of its "Self-Help Sourcebook" directory has over 700 national and "model" groups,
available for $9 postpaid).
(201) 625-7101

National Self-Help Clearinghouse
(212) 354-8525.

Self-Help Clearinghouses in:

CANADA
:
Calgary
(403) 262-1117

Nova Scotia
(902) 466-2011

Toronto
(416) 487-4355

Prince Edward Island
(902) 628-1648

Vancouver
(604) 876-6086

Winnipeg
(204) 589-5500 or 633-5955

OTHER COUNTRIES having national self-help clearinghouses include:

Argentina 1-582-8680

Germany 30-891-4019

Israel 03-2999389

Poland 22-314551

Back up to: Non-Profits & Gov't. Agencies, Info by Topic Telephone List, Self-Help Clearinghouses by State

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