HealthyPlace.com

HealthyPlace.com
Information & Referral Resources

Just a note: These are resources that we have come across that MAY! prove helpful to you.
Please understand, we ARE NOT recommending or endorsing any of them. It is up to you to
determine if they offer something you need and whether or not it is appropriate for your situation.

Hotline Numbers, National Alliance for Mentally Ill-State Affiliate List,
Non-Profits & Gov't. Agencies, Info by Topic Telephone List, Self-Help Clearinghouses by State,
Child Abuse & Neglect, Missing Children, NIH's Institutes, Additional Resources



Hotline Numbers

  • National Drug & Alcohol Treatment Hotline
    800-662-HELP
  • National Domestic Violence Hotline
    800-799-7233
  • National Child Abuse Hotline
    800-4-A-CHILD
  • National Youth Crisis Hotline
    800-HIT-HOME
  • National Adolescent Suicide Hotline
    800-621-4000
  • National Runaway Hotline
    800-621-4000
  • Panic Disorder Information Hotline
    800- 64-PANIC
  • Project Inform HIV/AIDS Treatment Hotline
    800-822-7422

State-by-state rape, abuse, and sexual harassment hotlines for women.

There are many more organizations listed below which offer help


National Alliance for the Mentally Ill (NAMI)
State Affiliate List:

Alabama AMI
Telephone: (205)833-8336

Alaska AMI
Telephone: (907)277-1300

Arizona AMI (AAMI)
Telephone: (602)244-8166

Arkansas AMI-Help And Hope Inc
Telephone: (501)661-1548

California AMI
Telephone: (916)567-0163

Colorado AMI
Telephone: (303)321-3104

Connecticut AMI
Telephone: (203)586-2319

AMI DC Threshold
Telephone: (202)546-0646

AMID (AMI Delaware)
Telephone: (302)427-0787

Florida AMI
Telephone: (904)222-3400

Georgia AMI
Telephone: (404)894-8860

Hawaii State AMI
Telephone: (808)737-2778

Idaho AMI
Telephone: (208)376-2143

AMI Illinois State Coalition
Telephone: (217)522-1403

Indiana AMI
Telephone: (317)236-0056

AMI Of Iowa
Telephone: (515)254-0417

Kansas AMI
Telephone: (913)233-0755

Kentucky AMI
Telephone: (502)245-5284

Louisiana AMI
Telephone: (504)343-6928

AMI - Maine
Telephone: (207)622-5767

AMI Of Maryland Inc.
Telephone: (800)467-0075, (410)467-7100

AMI Of Massachusetts Inc
Telephone: (617)426-2299

AMI Of Michigan
Telephone: (517)485-4049

AMI Of Minnesota, Inc.
Telephone: (612)645-2948

Mississippi AMI
Telephone: (601)992-1227

Missouri Coalition Of AMI
Telephone: (800)374-2138, (314)634-7727

MONAMI (Montana AMI)
Telephone: (406)443-7871

Nebraska AMI
Telephone: (402)489-6239

AMI Of Nevada
Telephone: (702)254-2666

AMI Of New Hampshire
Telephone: (603)225-5359

New Jersey AMI
Telephone: (609)695-4554

AMI New Mexico
Telephone: (505)254-0643

AMI - New York State
Telephone: (800)950-3228, (518)462-2000

North Carolina AMI
Telephone: (919)851-0063

North Dakota AMI
Telephone: (701)852-5324

AMI Of Ohio
Telephone: (800)686-2646, (614)444-2646

Oklahoma AMI
Telephone: (800)583-1264

Oregon AMI
Telephone: (503)370-7774

AMI Of Pennsylvania
Telephone: (717)238-1514

AMI Of Rhode Island
Telephone: (401)464-3060

South Dakota AMI
Telephone: (800)551-2531, (605)697-7210

South Carolina AMI
Telephone: (803)779-7849

Tennessee AMI
Telephone: (615)531-8264

Texas AMI
Telephone: (512)474-2225

Utah AMI
Telephone: (801)584-2023

AMI Of Vermont
Telephone: (800)639-6480, (802)257-5546

Virginia AMI
Telephone: (800)484-7753 x(8264), (804)225-8264

AMI Of Washington State
Telephone: (206)438-0211

West Virginia AMI
Telephone: (304)342-0497

AMI Of Wisconsin Inc
Telephone: (608)242-7223

Wyoming AMI
Telephone: (307)234-6246

Back up to: Hotline Numbers, National Alliance for Mentally Ill-State Affiliate List



Non-Profit Groups for Illnesses & Disorders
Government Agencies

AASK America/Aid to Adoption of Special Kids (800) 232-2751

American Association of Kidney Patients (800) 749-2257

American Council of the Blind (800) 424-8666

American Diabetes Association, Inc. (800) 232-3472

American Kidney Fund, Inc. (800) 638-8299

The American Liver Foundation (800) 223-0179

American Parkinson Disease Association (800) 223-2732

AT&T National Special Needs Center (800) 233-1222

AT&T National Special Needs Center (800) 833-3232 (TDD)

Better Hearing Institute (800) 327-9355

Blind Children's Center (800) 222-3566

Blinded Veterans Association (800) 669-7079

BRS Information Technologies (800) 955-0906

Captioned Films/Video for the Deaf Program (800) 237-6213

Center for Rehabilitation Technology (800) 726-9119

Center for Special Education Technology (800) 873-8255

Children's Hospice International (800) 242-4453

Cooley's Anemia Foundation, Inc. (800) 221-3571, (800) 522-7222

The Deafness Research Foundation (800) 535-3323

"Dial A Hearing Screening Test" (800) 222-3277, (800) 345-3277, (800) 334-2564

The EAR Foundation (800) 545-4327

Epilepsy Foundation of America (800) 332-1000

Epilepsy Foundation of America (800) 332-4050

The Family Survival Project (800) 445-8106

The Feingold Association of the United States (800) 321-3287

HEALTHSOUTH Rehabilitation Corporation (800) 768-0018

Hearing Information Center (800) 622-3277

Higher Education and Adult Training for People with Handicaps Resource Center (800) 544-3284

HUD User (800) 245-2691

Human Growth Foundation (800) 451-6434

IBM National Support Center for Persons with Disabilities (800) 426-2133

Job Accommodation Network (800) 526-7245, (800) 526-4698

LINC Resources, Inc. (800) 772-7372

National Alliance of Blind Students (800) 424-8666

National Association for Hearing and Speech Action (800) 638-8255

National Association for Parents of the Visually Impaired (800) 562-6265

National Audiovisual Center (800) 638-1300

National Autism Hotline (304) 525-8014

National Center for Research in Vocational Education (800) 762-4093

National Center for Stuttering (800) 221-2483

National Center for Youth with Disability (800) 333-6293

National Down Syndrome Congress (800) 232-6372

National Down Syndrome Society (800) 221-4602

National Easter Seal Society (800) 221-6827

The National Foundation for Illeitis and Colitis (800) 343-3637

National Head Injury Foundation, Inc. (800) 444-6443

National Headache Foundation (800) 843-2256, (800) 523-8858

National Hearing Aid Society (800) 521-5247

National Hospice Organization (800) 658-8898

National Information Center for Children and Youth with Disabilities 1-800-695-0285 (V/TTY), (202) 884-8200 (V/TTY)

National Information Clearinghouse for Infants with Disabilities and Life-threatening Conditions
(800) 922-1107, (800) 922-9234

National Information System for Vietnam Veterans and their Children (800) 922-1107,
(800) 922-9234

National Mental Health Association (800) 969-6642

National Multiple Sclerosis Society (800) 624-8236

National Neurofibromatosis Foundation (800) 323-7938

National Parkinson Foundation (800) 327-4545, (800) 433-7022

National Rehabilitation Information Center (800) 346-2742

National Retinitis Pigmentosa Foundation (800) 638-2300

National Society to Prevent Blindness (800) 221-3004

National Spinal Cord Injury Association (800) 962-9629

National Tuberous Sclerosis Association, Inc. (800) 225-6872

Office for Civil Rights, U.S. Department of Health and Human Services (800) 368-1019

Parkinson's Disease Foundation, Inc. (800) 457-6676

Parkinson's Educational Program (800) 344-7872

PsychINFO (800) 336-4980

RP Foundation Fighting Blindness (800) 638-2300

Social Security Administration (800) 772-1213, (800) 234-5772
Medicare (800) 638-6833

Stuttering Resource Foundation (800) 232-4775

Technical Aids and Assistance for the Disabled Center (800) 346-2939

Tele-Consumer Hotline (800) 332-1124

TRIPOD GRAPEVINE (800) 352-8888, (800) 287-4763

United Cerebral Palsy Associations, Inc. (800) 872-5827

United Leukodystrophy Foundation (800) 728-5483

VISION Foundation, Inc. (800) 852-3029

Visiting Nurse Association of America (800) 426-2547

Work & Family Clearinghouse- Women's Bureau 800-827-5335, 202-219-4486

Back up to: Hotline Numbers, National Alliance for Mentally Ill-State Affiliate List,
Non-Profits & Gov't. Agencies



"For More Info" by Subject-Telephone List:

AGING

National Council on Aging
800-424-9046

National Institute on Aging Information Center
800-222-2225


AIDS

National Association of People with AIDS
202-898-0414.

CDC National AIDS Hotline
800-342-2437, 800-458-5231, 800-344-7432 (Spanish)

National AIDS Information Clearinghouse
800-458-5231

AIDS Clinical Trials Info Service
800-874-2572

HIV/AIDS Treatment Information Service
800-448-0440

Teen AIDS Line
800-234-TEEN (Mon-Fri) or 800-440-TEEN (weekends)

ALCOHOL

American Council on Alcoholism
800-527-5344, (410)889-0100

National Clearinghouse for Alcohol and Drug Information
800-729-6686, (301)468-2600

National Council on Alcoholism and Drug Dependence
800-622-2255

National Council on Alcohol and Drugs
800-475-HOPE

 

ALZHEIMER'S DISEASE

Alzheimer's Association
800-272-3900.

Alzheimer's Disease Association
800-621-0379, 800-572-6037

Alzheimer's Disease Education and Referral Center
800-438-4380

AMYOTROPHIC LATERAL SCLEROSIS (Lou Gehrig's disease) ALS Association
800-782-4747

ARTHRITIS

Arthritis Foundation
800-283-7800

CANCER

American Cancer Society
800-227-2345

National Alliance of Breast Cancer Organizations (NABCO)
1-212-719-0154

Y-Me Breast Cancer Support Program
800-221-2141

Candle lighters Childhood Cancer Foundation
800-366-2223

Cancer Information Service
(800) 422-6237

The Wellness Community
301-314-2555

American Institute for Cancer Research Nutrition Hotline
800-843-8114

CEREBRAL PALSY

United Cerebral Palsy Association
800-872-5827

CHRONIC PAIN

American Chronic Pain Association
1-916/632-0922.

CREDIT COUNSELING

Consumer Credit Counseling Services
800-388-2227

CYSTIC FIBROSIS

Cystic Fibrosis Foundation
800-344-4823

DEPRESSION

National Foundation for Depressive Illness
Recorded announcement of the symptoms of depression and how to obtain help
800-239-1295 (24 hrs), 800-248-4344

National Depressive & Manic-Depressive Association
1-800-826-3632.

Depression Awareness
800-421-4211

DIABETES

American Diabetes Association
1-800-342-2383.

Juvenile Diabetes Foundation
800-223-1138

DOMESTIC VIOLENCE

National Domestic Violence Hotline
Info & Referrals for women who are abused verbally, mentally or physically.
1-800-799-SAFE (24 hrs)

DOWN'S SYNDROME

National Down's Syndrome Society
800-221-4602

National Down's Syndrome Congress
800-232-6372

DRUG ABUSE

National Council on Alcohol and Drug Dependency
800-622-2255

National Council on Alcohol and Drugs
800-475-HOPE

National Clearinghouse for Alcohol and Drug Information
800-487-4889 or (301)230-2867

800-COCAINE
800-262-2463

888-MARIJUANA
888-627-4582

EATING DISORDERS

Grace Sq. Hosp. Eating Disorder Hotline
1-800-382-2832 (24 hrs)

Bulimia, Anorexia Self Help/Behavior Adaptation Support and Healing
800-762-3334, 800-227-4785

EPILEPSY

Epilepsy Foundation of America
1-800-332-1000.

GAMBLING

National Council on Compulsive Gambling
800-522-4700

GAY & LESBIANS

National Gay & Lesbian Hotline
Support & counseling for gay & lesbian teenagers.
1-800-347-TEEN (Thurs.-Sun., 7 pm-11:45 pm ET)

Gay and Lesbian National Hotline
888-843-4564 or (212)633-7492

GRIEF & LOSS

Grief Recovery Institute
800-445-4808

HEALTH

Civitex
Info on a broad range of problems (alcoholism, homelessness, family problems).
1-800-223-6004 (day)

NIS
Illnesses; support groups, education, treatments, community services, financial aid, advocacy, adoption services.
1-800-922-9234

National Health Info. Center
Info & Referral to support groups, prof. societies, government agencies, publications.
1-800-336-4797

Rural Information Center Health Service
Health service referrals in rural areas.
800-633-7701

HEART DISEASE

Mended Hearts
1-800-242-8721, Ext. 1442.

HOMOSEXUALITY

Gay and Lesbian National Hotline
888-843-4564 or (212)633-7492

HOSPICE CARE

Hospice Education Institute
Information and referral service.
800-331-1620

Children's Hospice Internation
800-242-4453

IMPOTENCE

Impotence Information Center
800-843-4315 (impotence information)
800-543-9632 (prostate information)

KIDNEY DISEASE / HEMODIALYSIS

American Association of Kidney Patients
1-800-749-2257.

LIVER DISEASE

American Liver Foundation
1-800-223-0179.

LUPUS

The American Lupus Society
1-800-331-1802.

MENTAL HEALTH

National Clearinghouse Family Support/Children's Mental Health
1-800-654-1247 (24 hrs)

National Alliance for the Mentally Ill
1-800-950-6264.

MULTIPLE SCLEROSIS

Multiple Sclerosis Association of America
1-800-532-7667

OBSESSIVE-COMPULSIVE DISORDER

National OCD Information Hotline
800-NEWS-4-OCD

PARKINSON'S DISEASE

American Parkinson Disease Association
800-223-2732.

PAIN

National Chronic Pain Outreach Association
Telephone: 301-652-4948

PREGNANCY

Planned Parenthood
800-230-7526

Pregnancy Hotline
800-848-5683

National Adoption Center
800-862-3678

RARE DISORDERS

National Organization for Rare Disorders [NORD]
Info. & networking for persons with rare disorders; literature.
1-800-999-6673 (day)

National Information Center for Orphan Drugs & Rare Diseases
Referrals to support groups, health centers; services for orphan drugs.
1-800-456-3503 (day)

Office of Orphan Products Development
Answers questions about drugs used for illnesses affecting fewer than 200,000 Americans.
Also provides referrals to pharmaceutical companies supplying orphan drugs.
800-300-7469

American Leprosy Missions
800-543-3135

Batten Disease Support
800-448-4570

Cooley's Anemia Foundation
800-522-7222

Histiocytosis Association
800-548-2758

National Lymphedemia Network
800-541-3259

National Neurofibromatosis Foundation
800-323-7938

National Reye's Syndrome Foundation
800-233-7393

National Tuberous Sclerosis Association
800-225-6872

Sickle Cell Disease Association of America
800-421-8453

Spina Bifida Association of America
800-621-3141

Sturge-Weber Foundation
800-627-5482

Tourette's Syndrome Foundation
800-237-0717

United Scleroderma Foundation
800-722-4673

SELF-INJURY/SELF-ABUSE

SAFE (Self-Abuse Finally Ends) Alternative Information Line
800-DONT-CUT

SEXUALLY TRANSMITTED DISEASES

Center for Disease Control-National STD Hotline
800-227-8922

SUDDEN INFANT DEATH SYNDROME (SIDS)

SIDS Alliance
800-221-7437

American SIDS Institute
800-232-7437

SPINAL CORD INJURY & PARALYSIS

National Spinal Cord Injury Association
800-962-9629

American Paralysis Association
800-225-0292

National Rehabilitation Information Center
800-346-2742

STROKE

American Heart Association Stroke Connection
800-553-6321.

STUTTERING

National Center for Stuttering
800-221-2483

Stuttering Foundation of America
800-992-9392

SUBSTANCE ABUSE/RECOVERY

Al-Anon Family Group Headquarters, Inc. (800) 356-9996
Alcoholism and Drug Treatment Addiction Center (800) 383-4357
American Council on Alcoholism (800) 527-5344
800 Cocaine (800) 262-2463
"Just Say No" International (800) 258-2766
The National Clearinghouse for Alcohol and Drug Information (800) 729-6686
National Drug Treatment Referral and Information Hotline (800) 662-4357

WOMEN'S HEALTH INFO

PMS Access
Recorded info line on premenstrual syndrome. Referrals to local doctors.
800-992-3636

Endometriosis Association
Recorded info line.
800-992-3636

Back up to: Hotline Numbers, National Alliance for Mentally Ill-State Affiliate List,
Non-Profits & Gov't. Agencies, Info by Topic Telephone List,

For problems, issues or illnesses not listed above, contact the following:

American Self-Help Clearinghouse
1-201/625-7101

National Self-Help Clearinghouse City University of New York Graduate Center
1-212/354-8525

National Mental Health Consumer's Self-Help Clearinghouse
1-800/553-4539

Self Help Clearinghouses & Information Help lines

For help in finding or forming a member-run Mutual Aid Self-Help group for any type of illness, disability, addiction, bereavement situation, mental health, parenting or other stressful life problem, there are self-help clearinghouses and information help lines in the U.S. and around the world:

  • Arizona
    (602) 231-0868
  • Arkansas
    (501) 932-5555 (info on groups only)
  • California
    San Diego 619-275-0607
    San Fancisco 415-921-4044
    Sacramento 916-368-3100
    Davis 916-756-8181
  • Connecticut
    (203) 789-7645
  • Illinois
    (312) 368-9070
  • Indiana
    (616) 925-0594
  • Iowa
    1-800-952-4777 (in Iowa) (515) 576-5870
  • Kansas
    1-800-445-0116 (in KS) (316) 689-3843
  • Massachusetts
    (413) 545-2313
  • Michigan
    1-800-777-5556 (in MI) (517) 484-7373
  • Missouri
    Kansas City (816) 472-HELP
    St. Louis (314) 773-1399
  • Nebraska
    (402) 476-9668
  • New Hampshire
    1-800-852-3388 (information on groups only)
  • New Jersey
    1-800-FOR-M.A.S.H. (in NJ) (201) 625-9565
  • New York
    New York City
    (212) 586-5770
    Westchester
    (914) 949-0788, ext. 237
  • North Carolina
    (704) 331-9500
  • Ohio
    Dayton area (513) 225-3004
    Toledo area (419) 475-4449
  • Oregon
    Portland area (503) 222-5555 (information on groups only)
  • Pennsylvania
    Pittsburgh area (412) 261-5363
    Scranton area (717) 961-1234
  • South Carolina
    (803) 791-9227
  • Tennessee
    Knoxville area (615) 584-6736
    Memphis area (901) 323-0633
  • Texas
    (512) 454-3706
  • Utah
    Salt Lake City (801)978-3333 (information on groups only)
  • Washington, D.C. (metro area)
    (703) 941-LINK

For information on any national U.S. group, or for those interested in starting new national support networks:

American Self-Help Clearinghouse
Its latest edition of its "Self-Help Sourcebook" directory has over 700 national and "model" groups,
available for $9 postpaid).
(201) 625-7101

National Self-Help Clearinghouse
(212) 354-8525.

Self-Help Clearinghouses in:

CANADA
:
Calgary
(403) 262-1117

Nova Scotia
(902) 466-2011

Toronto
(416) 487-4355

Prince Edward Island
(902) 628-1648

Vancouver
(604) 876-6086

 

Winnipeg
(204) 589-5500 or 633-5955


OTHER COUNTRIES having national self-help clearinghouses include:

Argentina 1-582-8680

Germany 30-891-4019

Israel 03-2999389

Poland 22-314551

Back up to: Hotline Numbers, National Alliance for Mentally Ill-State Affiliate List,
Non-Profits & Gov't. Agencies, Info by Topic Telephone List, Self-Help Clearinghouses by State



Child Abuse and Neglect

  • National Center for Missing & Exploited Children
    Hotline: 800-843-5678 Telephone: 703-235-3900
  • Child help USA
    Info & referrals to local agencies; crisis counseling. Info & referrals to local agencies; crisis counseling.
    1-800/4-A-CHILD (24 hrs)
  • National Council on Child Abuse & Family Violence
    Info & referrals on child abuse & other types of family violence.
    1-800/222-2000 (24 hrs)
  • National Clearinghouse on Child Abuse & Neglect
    Telephone: 800-FYI-3366, 703-385-7565
  • The National Resource Center on Sexual Abuse
    Telephone: 800-543-7006
  • National Committee to Prevent Child Abuse
    Telephone: 312-663-3520
  • National Adolescent Perpetrator Network
    Telephone: 303-321-3963
  • Military Family Resource Center, Military Family Clearinghouse
    Telephone: 800-336-4592, 703-696-5806
  • National Criminal Justice Reference Service
    Provides information on violent offenders.
    Telephone: 800-851-3420
  • National Clearinghouse on Runaway & Homeless Youth
    Telephone: 301-608-8098
  • National Maternal and Child Health Clearinghouse
    Telephone: 703-821-8955 ext. 254
  • National Center for Education in Maternal & Child Health
    Telephone: 703-524-7802
  • National Resource Center on Child Abuse & Neglect
    Telephone: 800-227-5242, 303-792-9900
  • National Victims Resource Center
    Provides information on perpetrators and victimization trends.
    Telephone: 800-627-6872
  • National Information Clearinghouse for Infants with Disabilities and Life Threatening Conditions
    Telephone: 800-922-9234, ext. 201, 803-777-4435
  • CSAP National Resource Center for the Prevention of Perinatal Abuse of Alcohol and other Drugs
    Telephone: 800-354-8824, 703-218-5600
  • National Clearinghouse for Alcohol & Drug Information
    Telephone: 800-729-6686, 301-230-2687
  • National Sudden Infant Death Syndrome Information Center
    Telephone: 703-821-8955 ext. 249 or 474



Missing Children

Vanished Children's Alliance
Helps victims; conducts investigations; training & materials, registry; counselors; listening.
800-VANISHED (24 hrs)

Child Find
Helps locate children; helps lost children. Info for parents who have abducted their children in violation of a court order.
800/426-5678 (day), 800-A WAY OUT, (24 hrs)

National Center for Missing & Exploited Children
Info. re: missing/exploited youth; helps locate missing children.
800-843-5678

Runaway Hotline
800-231-6946 (24 hrs)

National Runaway Hotline
Crisis counseling, Info & Referral for runaways & youth with other problems.
1-800-HIT-HOME (24 hrs)

National Runaway Hotline
Info & Referral for runaways re: shelter, counseling; food pantries; transportation.
1-800-621-4000 (24 hrs).

Youth Issues/Problem Parenting

Covenant House NineLine
Referrals for youth or parents re: drugs, homelessness, runaways, etc. Message relays, reports of abuse. Helps parents with problems with their kids. If all counselors are busy, stay on line & one will be with you as soon as possible.
1-800-999-9999 (24 hrs)

National Adoption Information Clearinghouse
Telephone: 301-231-6512

National Information Center for Children & Youth with Disabilities
Telephone: 800-695-0285, 202-416-0312

 

Back up to: Hotline Numbers, National Alliance for Mentally Ill-State Affiliate List,
Non-Profits & Gov't. Agencies, Info by Topic Telephone List, Self-Help Clearinghouses by State,
Child Abuse & Neglect, Missing Children



NIH'S INSTITUTES


National Institute on Aging 301-496-1752

National Institute on Alcohol Abuse and Alcoholism NIAAA 301-443-3860

National Institute of Allergy and Infectious Diseases NIAID 301-496-5717

National Institute of Arthritis and Musculoskeletal and Skin Diseases NIAMS 301-496-8188

National Cancer Institute NCI 301-496-5583

National Institute of Child Health and Human Development NICHD 301-496-5133

National Institute of Diabetes and Digestive and Kidney Diseases NIDDK 301-496-3583

National Institute on Deafness and Other Communication Disorders NIDCD 301-496-7243

National Institute on Drug Abuse NIDA 301-443-1124

National Institute of Environmental Health Sciences NIEHS 919-541-3345

National Eye Institute NEI 301-496-5248

National Institute of General Medical Sciences NIGMS 301-496-7301

National Heart, Lung, and Blood Institute NHLBI 301-496-4236

National Institute of Mental Health NIMH 301-443-4513

National Institute of Neurological Disorders and Stroke NINDS 301-496-5751


Back up to: Hotline Numbers, National Alliance for Mentally Ill-State Affiliate List,
Non-Profits & Gov't. Agencies, Info by Topic Telephone List, Self-Help Clearinghouses by State,
Child Abuse & Neglect, Missing Children, NIH's Institutes



Additional Resources-Books & Pamphlets


Aging

"Directory of Nursing Homes," 1990-91, 1,456 pages, $225. ORYX Press, 4041 North Central,
Suite 700, Phoenix, AZ 85012, Tel: (800) 279-6799.
Comprehensive listing of nursing home facilities and services in the U.S.

"Resource Directory for Older People," 1989, 24 pages, $10. National Institute on Aging,
9000 Rockville Pike, Bethesda, MD 20892, Tel: (301) 496-1752. (An updated directory is in process).
Contains the names, addresses and telephone number.

Aids

"The National Directory: Local AIDS Services," 1991; call for price. U.S. Conference of Mayors, AIDS program,
1620 Eye St., N.W., Washington, DC 20006. Tel: (202) 293-7330.
Directory lists services related to AIDS in communities throughout the U.S. It includes local and state health departments, community based organizations, social-support services, federal agencies, hospitals and home health care agencies. Includes comprehensive listing of clinical treatments, PNA chapters, and state and local AIDS and HIV
treatment resources.

"Funding Sources for AIDS Activities: Prepared for the 2nd National Conference on the Prevention of HIV Infection Among Racial and Ethnic Minorities in the U.S.," 1988. U.S. Conference of Mayors,
1620 Eye St., N.W., Washington, DC 20006. Tel: (202) 293-7330
Directory lists foundations which provide support for AIDS programs and AIDS-related activities in the areas of services, education, and research.

"The Raven's Guide to AIDS Prevention Resources," 1991, 45 pages, free. National Native American
AIDS Prevention Center, 3515 Grand Ave., Suite 100, Oakland, CA 94610. Tel: (800) 283-2436
A Catalog of programs, materials, and resources focusing on AIDS prevention among Native Americans. Includes directory of resource agencies.


Alcohol & Drug Abuse

"National Directory of Alcohol and Drug Abuse Treatment and Prevention Programs," 1989, approx. 400 pages, single copy free.
National Clearinghouse for Alcohol and Drug Information, P.O. Box 2345, Rockville, MD 20852.
Tel: (800) 729-6686; TDD (800) 487-4889
Nationwide listing of the location of programs. (Does not include descriptions of services provided by the programs).

 

Amputation

"American Amputee Foundation: National Resource Directory," 1991, $25.
American Amputee Foundation, Inc., P.O. Box 250218 Hillcrest Station, Little Rock, AR 7225, Tel: (501) 666-2523
Major reference tool for amputee related information, direct services and products.


Amyotrophic Lateral Sclerosis (ALS)

"Why Didn't Somebody Tell Me About These Things?" 139 pages, $8.50.
Amyotrophic Lateral Sclerosis
Association, 21021 Ventura Blvd., Suite 321, Woodland Hills, CA 91364. Tel: (802) 782-4747.
A collection of information and illustrations of equipment, aids, clothing, skills and other things of interest to the ALS patient and patients with similar diseases and disability conditions.


Assistive Technology

"Assistive Technology Sourcebook," 1990 576 pages, $60.
RESNA PRESS, 1101 Connecticut Ave., N.W., Suite 700, Washington, DC 20036-4303. Tel: (202) 857-1199

Complete guide to assistive technology including information resources, equipment evaluation; personal care/home; education/children, employment, recreation/leisure, mobility, computer access, etc.

"Directory of Assistive Technology Data Sources," 1989, 14 pages, $10. Center for Special Education Technology,
The Council for Exceptional Children, 1920 Association Drive, Reston, VA 22091. Tel: (703) 620-3660, (800) 873-8255
Annotated Directory of Assistive Technology Data Resources helps disabled individuals, parents, and educators to find current product information. Both on-line and print data bases are available.

"Assistive Technology Resource Directory," 1990, 62 pages, free. Center for Special Education Technology,
The Council for Exceptional Children, 1920 Association Drive, Reston, VA 22091. Tel: (703) 620-3660, (800) 873-8255.
Annotated directory of resources to meet the need for information and awareness of assistive technology resources.


Blind/Visually Impaired

"Vision Resource List," 1991, 13th edition, free. VISION Foundation, Inc., 818 Mt. Auburn Street,
Watertown, MA 02172. Tel: (617) 926-4232. Available in large print or cassette.

"Resources for Elders with Disabilities," large print, 1991. Resources for Rehabilitation, 33 Bedford Street, Suite 19A, Lexington, MA 02173. Tel: (617) 862-6455.

"Rehabilitation Resource Manual: VISION," standard print, 1991. Resources for Rehabilitation, 33 Bedford Street, Suite 19A, Lexington, MA 02173. Tel: (617) 862-6455.

"Living with Low Vision: A Resource Guide for People with Sight Loss," large print, 1991. Resources for Rehabilitation, 33 Bedford Street, Suite 19A, Lexington, MA 02173. Tel: (617) 862-6455.
Biannual resource directory listing agencies and other organizations which provide services for blind and visually impaired persons.

"Volunteers Who Produce Books, Braille, Tape, Large Type," 1988, 95 pages, free. Reference Section,
National Library Service for the Blind and Physically Handicapped, Library of Congress, Washington, DC 20542.
Tel: (202) 707-5100. Lists (by state) special education agencies, resources for visually impaired persons, proofreaders and producers of braille, recorded and large print.

"Resource Guide for Persons with Vision Impairments," 1991 (updated monthly, free).
National Support Center for Persons with Disabilities, P.O. Box 2150, Atlanta, GA 30055. Tel: (800) IBM-4832 (voice), (800) 284-9482 (TDD).
Provides description of different adaptive computer related aids and products that are available to individuals with vision impairments.


Children/Youth

"Directory for Exceptional Children," 1990-91, $50 plus $2.84 4th class postage.
Porter Sargent Publishers Inc., 11 Beacon St., Boston, MA 02108. Tel: (617) 523-1670.
Over 3000 schools treatment centers, speech and hearing societies, state and private residential facilities, and other services for disabled children are described and listed for each state.


Data Sources

"Special Ware Directory," 1985 approx 100 pages, $24.75. Oryx Press, 4041 No. Central, Suite 700,
Phoenix, AZ 85012. Tel: (800) 279-6799.

Software for Special Education:
"Directory of Software Data Sources, 1990," 30 pages, free. Center for Special Education Technology,
The Council for Exceptional Children, 1920 Association Drive, Reston, Virginia 22091. Tel: (703) 620-3660, (800) 873-8255.
Annotated directory of software databases to assist special educators in their search for high quality
instructional software.

Deaf/Blind

"Directory of Agencies Serving Individuals who are Deaf-Blind," 1991, 150 pages, call for current price,
Helen Keller National Center, Community Education Department, 111 Middle Neck road, Sands Point, NY 11050, Tel: (516) 944-8900. Agencies are listed by state with description of services.


Deaf/Hearing Impaired

"American Annals of the Deaf: Reference Issue: 1991," 135 pages, $22.50.
American Annals of the Deaf, 800 Florida Avenue, P.O. Box 6, Washington, DC 20002-3695. Tel: (202) 651-5340
This reference issue published annually in April, supplies information on programs and services for deaf persons in the United States including educational, rehabilitation, social and recreational resource. Most information is listed by state.

"International Telephone Directory of TDD Users: 1991," approximately 250 pages, $15 fee includes directory, a listing in the directory and a quarterly newsletter subscription.
Telecommunications for the Deaf, Inc., 814 Thayer Ave., Silver Spring, MD 20910. Tel: (301) 589-3006 (TDD), (301) 589-3786 (Voice)
Lists TDD numbers for agencies and organizations, and those of individual members of TDI.

"Resource Guide for Persons with Hearing Impairments," 1991 (updated monthly).
National Support Center for Persons with Disabilities, P.O. Box 2150, Atlanta, GA 30055. Tel: (800) IBM-4832 (Voice), (800) 284-9482 (TDD)
Provides description of different adaptive computer related aids and products that are available to individuals with hearing impairments.


Developmental Disabilities

"1990 Resource Guide to Organizations Concerned with Developmental Disabilities," (annually), 244 pages, free.
American Association of University Affiliated Programs for Persons with Developmental Disabilities,
8630 Fenton St., Suite 410, Silver Spring, MD 20910. Tel: (301) 588-8252
Listing of university affiliated programs, satellite centers, mental retardation research centers, selected government agencies and programs and other resources.

"Resource Directory of Scientists and Engineers with Disabilities," 1987.
Project on Science, Technology and Disabilities, American Association for the Advancement of Science, 1333 H St., N.W., Washington, DC 20005. Tel: (202) 326-6672 (Voice/TDD)
A reference listing of over 950 scientists with disabilities, many of whom are available to consult in areas such as laboratory and curriculum adaptations for disabled accessibility, and on their particular scientific disciplines.


Down Syndrome

"Directory of Programs and Services for Children with Down Syndrome, Ages 0-6," 1991, free.
National Down Syndrome Society, 666 Broadway, New York, NY 10012. Tel: (212) 460-9330, (800) 221-4602
Listing of programs, services and age groups served.

"Parent Group Network," 1991, National Down Syndrome Congress, 1800 Dempster St., Park Ridge, IL 60068-1146. Tel: (800) 232-6372.
Listing of names, addresses and telephone numbers of parent groups/contacts throughout the U.S. and in other countries who are willing to serve as resources within their geographical area. Listing provided on a state level.


Employment

"Meeting the Needs of Employees with Disabilities," standard print, 1991.
Resources for Rehabilitation, 33 Bedford St., Suite 19A, Lexington, MA 02173. Tel: (617) 862-6455

"Labor Unions and Disability: A Manual for Labor Organizations and their Members and Rehabilitation Organizations, Employment Specialists, Job Coaches, Rehabilitation Counselors and Advocates." 1990, $3.00, 31 pages.
Ralard Printers, Inc., 7700 State Road 52, Dade City, FL 33525. Tel: (704) 588-2800
Guidebook is directed at labor unions and their members to inform them regarding the productive capacities of persons with disabilities and strategies for employment. Also targets rehabilitation and employment service agencies and organizations to increase their knowledge and role of labor unions.

"Labor Unions and Disability. Guidelines for Employment Specialists, Counselors, Job Coaches and Advocates." 1990, 13 pages, $1.00.
Ralard Printers, Inc., 7700 State Road 52, Dade City, FL 33525. Tel: (904) 588-2800.
Guidelines for employment specialists, counselors, etc., involved in job development, training, placement and advocacy to become more familiar with labor unions and how to include them more effectively in the placement process.

"Labor Unions and Disability Guidelines for Labor Unions and their Members," 1990, 36 pages, $1.75. Ralard Printers, Inc., 7700 State Road 52, Dade City, FL 33525. Tel: (904) 588-2800.
Designed to enlist the participation and support of organized labor in expanding employment opportunities and options for persons with disabilities.


Financial Aid/Assistance

"Financial Aid for the Disabled and Their Families, 1990-91, 309 pages, $35.00 + $3.00 for shipping.
Reference Service Press, San Carlos Industrial Park, 1100 Industrial Road, Suite 9, San Carlos, CA 94070. Tel: (415) 594-0743
A list of: Scholarships, Fellowships, Loans, Grants, Awards and Internships designed primarily or exclusively for the disabled and their families; status sources of benefits and reference sources on financial aid.


General Disability

"Case Management Resource Guide," 1991. 4-volume set, $60.00/volume, $195 for set.
Center for Consumer Healthcare Information, P.O. Box 16067, Irvine, CA 92713. Tel: (800) 627-2244
A directory of homecare, rehabilitation, mental health and long-term care facilities.

"Resources for People with Disabilities and Chronic Conditions," standard print, 1991. Resources for
Rehabilitation, 33 Bedford St., Suite 19A, Lexington, MA 02173. Tel: (617) 862-6455

"THE FIRST WHOLE REHAB CATALOG - A Comprehensive Guide & Products and Sources for the Physically Disadvantaged," 1990, 240 pages, $16.95.
Betterway Publications, Inc., P.O. Box 219, Crozet, VA 22932. Tel: (804) 823-5661
Lists thousands of sources for adaptive equipment and specialized supplies and services for disabled individuals. Principal listing categories include: daily living, personal care, access, communication, mobility, transportation, health, fitness, recreation, education and vocation.


General Health
"Consumer Health Information Sourcebook," 1990, 224 pages, $39.50.
ORYX Press, 4041 North Central, Suite 700, Phoenix, AZ 85012. Tel: (800) 279-6799
Disseminates health information to the general public. Provides descriptive evaluations of some 750 books, 79 popular magazines and newsletters, over 700 pamphlets, 30 health information clearinghouse and information centers, hotlines, etc.

"Health Information Resources in the Federal Government", 1990, 61 pages, $3 handling fee.
ONHIC, P.O. Box 1133, Washington, DC 20013-1133. Tel: (800) 336-4797 or (301) 565-4167
Directory encompasses selected federal and federally sponsored health information resources that ONHIC has found useful in responding to health inquiries.


Genetic Disorders

"International Directory of Genetic Services," 1990, 74 pages.
The March of Dimes Birth Defects Foundation, 1275 Mamaroneck Ave., White Plains, NY 10605. Tel: (914) 428-7100
Directory of Clinics that provide comprehensive genetic services worldwide.

"A Guide to Selected National Genetic Voluntary Organizations," 1989, 223 pages, free.
National Center for Education in Maternal and Child Health, 38 and R Streets, N.W., Washington, DC 20057. Tel: (202) 625-8400
Lists organization by subject; provides a description of purposes of each organization and publications available.

Prescriptions-Low Cost

Pharmaceutical Patient Assistance Directory Line- 800-762-4636. Provides a directory of various pharmaceutical assistance programs for persons who cannot afford prescriptions on their own.

If you come across a group, organization or other resource you think should be listed here,
please email us with the info. Also, if there's something we need to update, please let us know.

 

Back up to: Hotline Numbers, National Alliance for Mentally Ill-State Affiliate List,
Non-Profits & Gov't. Agencies, Info by Topic Telephone List, Self-Help Clearinghouses by State,
Child Abuse & Neglect, Missing Children, NIH's Institutes, Additional Resources



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