|
Page 1 of 2 In the UK, it's not easy getting an assessment for adult ADHD. And if you do, there are some doctors who don't believe in adult ADHD.
Assessment for ADD/ADHD in adults is still very difficult in the UK. There are only 2 NHS Clinics, one at the Maudsley Hospital in London and one at Addenbrooks Hospital in Cambridge. They will only take referrals from a local health service provider- GP or consultant Psychiatrist. This means that they will not take self-referrals or contacts before a referral.
Preparing for an ADHD Assessment in the UK
The first step is to speak to your GP and ask for a referral to your local Psychiatrist- there are waiting lists, which can vary in length in each area.
Once you have a referral and an appointment has been made, you do need to be prepared.
Gather together up-to-date information including the diagnostic criteria for ADHD in adults and some up-to-date research and if possible some old school reports and some evidence of why you feel you do fit the diagnostic criteria for ADHD. Try to keep some sort of diary of how the ADD-ADHD symptoms affect you and how they disrupt your daily life.
Some Psychiatrists Don't Believe in Adult ADHD
There are still many adult psychiatrists who believe that children outgrow ADD/ADHD and are therefore very sceptical of the condition in adults. It is therefore quite possible that they will disregard any mention of a referral for assessment of ADD/ADHD.
Below are some quotes from professionals who were asked about the prevalance of ADD/ADHD in adults. They're very interesting and may help when trying to get the professionals to take notice of what you are saying.
"The estimated rates of persistence of ADHD into adulthood range between 50 - 60% (Faraone, Biederman,et: Attention Deficit Hyperactivity Disorder in Adults; An Overview. iBiological Psychiatry, 2000;489-20). In practice however, the rates seem to be much higher." Ricardo Castaneda, MD, NYU/Bellevue
"The problem comes out of semantics. I think of ADHD as a genetic disorder which some circumstantial issues can mimic (alcohol and drugs in utero, concussions, lead poisoning, drug abuse) thus creating 'pseudo-ADHD.' In this view, you are correct: it is 100% persistent. No one who truly has ADHD 'gets rid' of it till there is a way to exchange chromosomes. Some adults cope with it better than others (so do some children!) and don't 'need' medication or coaching or education or structure or or or... You can see where this goes--who could not use a little better structure or organization? Who defines how good of coping is 'good enough?' What those people are saying when they say X% of ADHD patients have the disorder is that, by the standards of the one judging it, (100-X)% of ADHD patients are doing well enough that they don't need help (again, what is 'help'?--would they suddenly develop ADHD again if you took their secretary and Microsoft Outlook away from them?)"
"On the other hand, if you define ADHD by function, you have a moving target that is about as easy to pin down as to nail the proverbial Jell-O blob to a tree. I go with the 100%." John I. Bailey, Jr., M.D., Center for Attention & Learning, Mobile, AL.
This is when they will look into many other conditions and this is then when you need to politely suggest that they read the literature you have with you and ask if they would at least consider the up-to-date evidence. You may also ask if they can get in touch with one of the NHS Clinics to discuss things further before dismissing the referral request completely. Hopefully, after this (it may mean a 2nd appointment to give them time to look through things), they will try to be helpful and look into a referral. Bear in mind even if they do believe in the condition, they still have to get the authority of the local health authority to refer you to one of the clinics. So there may still be problems with obtaining the referral. Don't blame them directly if this is the case, but talk to them and see how you could maybe help to get the authority to understand the condition in your area.
What To Do When the Doctor Doesn't Believe in Adult ADHD
If, however, the local Psychiatrist still does not believe in the condition after reading the evidence, then you may have to get in touch with the local Health Authority directly.
If you do have to contact the local Health Authority either because the Psychiatrist will not consider a referral or if the Authority has told the Psychiatrist that they cannot refer you then you can start by writing direct to the Director for Mental Health Services at your local Authority or Trust. The best thing would be to get in touch with your local PALS and ask for the contact name for the Director of Mental Health Services and also where they are based so that you can write to them direct.
You need to start by explaining the problem, that you have asked for a referral for an assessment of ADD/ADHD and the local service providers have not agreed to refer you to one of the NHS Adult ADD/ADHD Clinics and that you feel that you do fit the Diagnostic Criteria and that you do not fit the criteria for other Mental Health conditions. Say you are requesting them to look into the problem and for them to arrange the referral for you, explain that you accept that if after an assessment by a doctor at the clinic they say that you do not fit the criteria you would at least appreciate the referral to at least know for sure that this is not the cause of your problems.
It is worth remembering at this point that you try to ensure that you point out the problem and what you want the person you are writing to do in the first paragraph and then maybe go on to give the evidence as to why in the following paragraphs - these are busy people so need to have a good idea in the first paragraph of any correspondence as it is more difficult if they have to read through reams to get to the point of the letter.
It is also worth enclosing evidence such as that prepared for the local Psychiatrist - Diagnostic Criteria, up-to-date information, up-to-date research and any personal evidence including old school reports if you have them. However, in the main body of the correspondence, keep things simple and to the point. It is therefore worth writing something like the following where you mention things and enclose them separately i.e.
|
