Living
Day-to-Day with DID/MPD
online conference transcript
What's it like living day-to-day with DID/MPD
(Dissociative
Identity Disorder, Multiple Personality Disorder)? There are many issues
for DID patients.
Psychologist, Randy Noblitt,
Ph.D. specializes in the treatment of DID patients. He says because
of the experience of abuse in childhood (child abuse), many are
suffering from
disturbing flashbacks,
dissociative
switching (switching alters), and
losing time. Then there's the
depression
and mood swings, thoughts of
suicide, and lonliness that accompanies many serious mental
illnesses.
Along with the above subjects, we discussed
managing
dissociation and getting your
alters to work together, treatment
for DID and integration (integrate your alters), what is life like after
integration, hypnosis and EMDR treatment for DID, how to get your partner to
understand MPD and how a significant other can help their DID partner.
David
Roberts is the HealthyPlace.com moderator.
The people in green are audience members.
David: Good Evening. I'm David Roberts. I'm the moderator for
tonight's conference. I want to welcome everyone to HealthyPlace.com. Our topic
tonight is "Living Day-to-Day with DID, MPD (Dissociative Identity
Disorder, Multiple Personality Disorder)." Our guest is Randy Noblitt,
Ph.D. In private practice in Dallas, Texas USA, Dr. Noblitt specializes in the
treatment of individuals who suffer from the psychological aftermath of
childhood trauma with special interest in dissociative disorders, PTSD, and
reports of ritual abuse.
Over the past 15 years, Dr. Noblitt has
evaluated, treated or supervised the treatment of more than 400 MPD/DID
patients. He also co-authored the book Recovery from Dissociative Identity
Disorder, a consumer's manual for finding and obtaining competent therapy,
social services and legal assistance.
Dr. Noblitt lectures widely on the existence of
ritual cults and mind-control techniques, and has served as an expert witness
in a number of child abuse cases. He is also a founding member of The Society
for the Investigation, Treatment and Prevention of Ritual and Cult
Abuse.
Good evening, Dr. Noblitt, and welcome to
HealthyPlace.com. We appreciate you being our guest tonight. Is it difficult
for people with DID to find
competent treatment for their disorder?
Dr. Noblitt:
Hello, David. Thanks for inviting me. Yes, it is difficult and
getting more so all the time.
David: Why
is that?
Dr. Noblitt:
Managed care is increasingly limiting funding for adequate
treatment. Additionally, the very real threat of litigation has caused many
excellent therapists to leave this field.
David: I'm
also wondering if there is an abundance of skilled therapists to treat
Dissociative
Identity Disorder or are there relatively few?
Dr. Noblitt:
There are fewer therapists than needed. As you probably know, there
is a prejudice in the mental health field regarding DID (MPD) so fewer people
are going into this area. This is extremely unfortunate since
individuals with
DID have significant needs. They are often known to fall between the cracks
not only in the realm of mental health but in the social services arena as
well.
David: In my
introduction, I had mentioned that you have treated, or supervised the
treatment of, some 400 DID (MPD) patients. In your experience, what are the
most difficult
issues for
DID patients to cope with on a day-to-day basis?
Dr. Noblitt:
The difficulties experienced by DID/MPD patients vary. One
significant problem is
suicidal and
self-destructive impulses. Many
individuals with
DID/MPD also experience
clinical
depression, mood swings, and disability causing unemployment and poverty
which further restricts their quality of life.
David: The
depression and the mood swings
are very difficult to cope with. What are your suggestions for dealing with
that?
Dr. Noblitt:
Individuals with depression often rely on
psychoactive medications, although a high percentage with
Dissociative Identity Disorder (Multiple Personality Disorder) do not get
adequate relief from medications alone. The development of
caring and supportive
relationships and psychotherapy is often helpful.
David: Many
with DID, and this is from email that I receive, live a pretty lonely life, in
that they find it difficult to share their DID with others.
Dr. Noblitt:
Yes, this is common. Isolation tends to increase a sense of
hopelessness
and depression. Taking the risk to develop caring relationships can go a
long way in reducing one's depression and sense of isolation.
The reason that many
DID patients experience loneliness and isolation stems from
their experience
of abuse in childhood by family members or other trusted individuals. This
early betrayal of trust is devastating.
David: We
have a lot of audience questions, Dr. Noblitt. Let's get to a few and then I
want to talk about
coping with
flashbacks and other day-to-day issues.
teesee: Why
the prejudice within the mental health field?
Dr. Noblitt:
This prejudice goes back to a time even before mental health was
considered an independent profession and has to do with the prejudices
associated with trance states and other states of mind that resemble
"possession." Additionally, there has been prejudice against dealing
with child abuse
and even now, I would say that the greatest part of our society is in denial
about the magnitude of this problem.
David: We
have a lot of questions regarding treatment for DID and integration:
lovey: Is it
important to integrate your alters, in your opinion?
Dr. Noblitt:
Not all individuals with DID/MPD are motivated to achieve complete
integration. I believe the patient has the right to make this decision without
coercion on the part of the therapist. If the patient asks me, "is it
healthy to integrate?" I would say yes.
More important than
integration is improving
the level of functioning and the quality of life.
David: Why
would you say "it's healthy to integrate?"
Dr. Noblitt:
I view integration as a process with many levels and steps to it.
Before the alternates "go away," the individual with DID learns to
integrate experience and behavior, reducing inner conflict and becoming more
functional.
colbe: Do
you still think the number 1
treatment for MPD is
hypnosis?
Dr. Noblitt:
Let me qualify my response by saying that I think it is important to
work in trance states and hypnotherapy may be a good way to accomplish this.
Hypnotherapy in the traditional sense may not always work with this
diagnosis.
maranatha: I
just found out in January that I have DID. My alters fight and tease each other
all the time. There is much confusion and mistrust among them. My doctor wants
me to try to get them to talk to each other, but I can't even get them in the
same "room," so to speak, or to sit with everyone. Any suggestions on
how to start building that trust and communication between them? I can't hold a
job down cause of so much confusion in them. Is it still possible to integrate
them?
Dr. Noblitt:
There are a variety of ways to
increase
communication: journaling, music therapy, art therapy, hypnotherapy. Why
not ask your therapist what he or she recommends since he or she knows you?
Integration is definitely possible and is a realistic goal. Not all individuals
with DID achieve this goal.
David: Also
Maranatha, we had an excellent conference on
getting your alters to work
together. I hope you'll take a look at the transcript.
Maera: Can
you touch on how to break the self-destructiveness or alters inside who will
not cooperate and only sabotage?
Dr. Noblitt:
Increase inner communication and learn why the self-destructive
motives are there. Usually, these self-destructive motives are related to
traumatic experiences that need resolution through therapy.
7claire7:
Why do you like to use trance and hypnosis?
Dr. Noblitt:
Dissociative Identity Disorder is a trance disorder. Unlike the
other various diagnoses, DID involves trance states. I have observed that
patients who do not work in trance states in therapy are often more unaware of
the functioning of their entire dissociative system. Developing this awareness
is healthy and increases the patient's control over the disorder.
David: There
are two things I wanted to address tonight and both deal with memory. Because
DID is the result of trauma or abuse, many with DID
suffer from flashbacks on a fairly frequent basis. How does
one cope with them and then reduce the number and frequency?
Dr. Noblitt:
This is a complex question. Ultimately,
flashbacks reduce over time after the trauma associated
with the flashback has been worked through in therapy or independently.
However, before that time, many individuals want to reduce these flashbacks and
are able to do so by learning to "shut down" the system.
I encourage my own patients to "open
up" when they are in therapy and "shut down" when they are not
in therapy. Also, some medications can help with the frequency and intensity of
flashbacks. Anti-psychotics tend to reduce some particularly
disturbing flashbacks and some
anti-anxiety medications will reduce the anxiety that
accompanies them. This varies from person to person. As I mentioned before,
people with DID sometimes have unusual reactions to medications.
David: When
you say "shut down" the system, what do you mean by that and how is
that accomplished?
Dr. Noblitt:
Individuals with DID sometimes experience trance states that may be
spontaneous or triggered by particular stimuli. When this happens, there is
likely to be more
dissociative
"switching" and "losing time." Shutting down is like the reverse of
being in such a trance state. This can be accomplished in different ways by
different individuals with DID. Sometimes it takes trial and error to find what
works with a particular individual. Some individuals respond to
"self-talk" and particular cues that may cause them to shut down. For
some individuals, particular pieces of music may serve this function.
David: The
other memory question I had was how to deal with
"losing
time" caused by switching alters or dissociating. This can be very
frustrating and confusing for those with DID. Do you have any suggestions for
helping with that?
Dr. Noblitt:
Improving inner communication and increasing the degree of
integration tends to reduce loss of time. Further, when the various alternates
are working well together, they can contract to prevent or reduce loss of
time.
David: By
the way, Dr. Noblitt, where can one purchase your book?
Dr. Noblitt:
Inititially, my assistant, Pam and I put this together for the
benefit of my patients who were experiencing problems obtaining appropriate
services. I would be happy to make a copy available over the internet if
individuals are interested and can receive attachments.
David: We
will post more info on that in the transcript when it goes up on Friday
evening. A few site notes, then we'll go right to the audience
questions:
Here's the link to the HealthyPlace.com
Personality Disorders Community. You can sign up for the
mail list and receive our newsletter, so you can keep up with events like
this.
We are looking for journalers in the
HealthyPlace.com Personality Disorders Community to keep
online diaries of their DID experiences. If you are
interested in doing that, here is the
signup link
You can
read the DID journals and post your comments on the
journalers' bulletin boards.
Here's the next audience question:
asilencedangel:
When you have a protector who is extremely angry and has been
recently betrayed by a spouse, how would you suggest she learn to trust
again?
Dr. Noblitt:
It may be necessary to resolve the betrayal of trust in a joint
therapy session with the spouse and that particular alternate present.
Hannah Cohen:
Dr Noblitt, what do you do when the spinning starts and the motion
carries the time wild and you cannot stop to see one thing to grab on to and
stop yourself? You stand still the best you can and say strong and loud for the
circle of spinning to stop so you can walk away from the noise! Dr Noblitt, I'm
having difficulty getting away from the noise. Any suggestions would be
appreciated. Thanks.
Dr. Noblitt:
When spinning occurs, the individual may be in great distress and
often is motivated to learn how to stop the spinning. This may be accomplished
several ways. The most permanent solution is to work through the trauma
associated with the spinning. A more temporary solution is to learn how to
trigger a "shut down" response. Some individuals are able to reduce
the effects of these experiences with medication. Many individuals spin as a
consequence of "telling the secrets." However, telling the secrets
eventually wears down the spinning response.
AngelaPalmer27:
How much luck have you had dealing with alters that
self-injure
other alters?
Dr. Noblitt:
This varies from individual to individual. Self injury is more
common early in therapy and less common later in therapy when the individual
has worked through the various issues around experiences of trauma.
Some individuals can learn through
imagery
to stop or block self-injurious behaviors. In response to your question, I
have had some patients who can learn to stop this experience and others who do
not learn to until they have worked through the trauma.
Bucs: I was
recently diagnosed with MPD. My alters don't talk to me or talk out
loud, as other peoples alters do. I have noticed that my handwriting styles
change day to day, and I still have what I refer to as "mood swings."
Will they ever talk to me? And should I even worry about it if they
don't?
Dr. Noblitt:
This is a common experience, particularly in the early stages of
therapy. As you work on opening up your system in therapy and increase inner
communication, this will become less of a problem for you.
sryope77: My
question is this (and I will try to be appropriate and not offend)... I lead a
BDSM alternative lifestyle and I was wondering how to keep the babies and kids
and others who don't want/need to be involved out of it. Please don't judge me,
this is a common lifestyle among many DID survivors and a lot of us led this
life LONG before the net, but we are having trouble keeping it
"healthy" for all of us.
Dr. Noblitt:
I know that this is a common experience among individuals with DID
and I do not judge anyone's sexual lifestyle. But, I recommend that individuals
who have been abused not participate in any activities that may be interpreted
as retraumatization by the alternates. This is not because this particular
lifestyle is "bad," but for many, it resembles too much the original
trauma.
sryope77: I
hope I can get some help with this. My former therapist "dropped" me
because she says she is a Christian and we are not to discuss that, but how can
we heal or get better if we are "censored" in therapy?????
David:
Sryope, I want to add here that if you are not finding your
therapist helpful, then it's time to get another therapist. Here's a good
article on "Rating Your Pyschoterapist."
Dr. Noblitt:
David is right. You need to find a therapist who is willing to work
with you and your needs, not have you conform to hers.
sryope77:
That's what my former therapist says, but we use our lifestyle
sometimes to work THROUGH the past traumas and it is about the only way we ever
get any "GOOD" touches like hugging and holding.
Dr. Noblitt:
This is exactly how a
traumatized
child feels.
David:
Here's the next question:
Snowmane:
Have you heard of using energy work along with containment exercises
to control and clear memories?
Dr. Noblitt:
Yes, I have heard of it, but I don't know of anyone who is having
success with this approach. Some have claimed that this can be effective, but
whenever I have investigated this further, I have not found it to be
helpful.
Containment exercises are very helpful but one
can never "clear" past experiences. The best one can do is
desensitize them and reduce inner conflict and keep self-sabotage to a minimum.
As a word of clarification, I should state that I am not from the
"energy" school and may be biased against it.
lovey: How
long is the treatment of Multiple Personality Disorder, Dissociative
Identity Disorder?
Dr. Noblitt:
Unfortunately,
DID/MPD requires
lengthy treatment. The briefest case I had took six months. Most
individuals, however, are in therapy for years. It should be pointed out,
however, that many individuals will develop some
skills in
managing dissociation within the first few months of treatment. Others may
have the symptoms of
depression and
PTSD
(Post-Traumatic Stress Disorder) reduce sometime later in therapy.
Treatment for DID seems to progress in steps and
stages. Individuals with more severe symptoms usually take longer than
individuals with milder symptoms.
wlaura: In
your treatment
of DID patients, what is their
life like after
integration? Are there residual problems related to the abuse?
Dr. Noblitt:
Some individuals are disabled prior to treatment and periodically
hospitalized to address their disabling condition. Many of these individuals
are able to obtain employment and experience significant improvements in their
functioning such that they no longer require hospitalization. However, in my
experience, patients who have successfully completed treatment still have some
residual problems. Treatment for DID does not completely wipe clean the effects
of trauma.
David: Many
of the subjects we are talking about tonight are also discussed in our hosted
support groups here at HealthyPlace.com. If you haven't been to any of our
DID support groups, I
encourage you to join in. We have trained hosts who run each group. They do a
great job and we get lots of email from our visitors talking about what a great
experience it is.
Of course, we have hosted support groups on our
site for many other mental health topics. Here are
the details and the schedule of all support groups at
HealthyPlace.com.
luckysurvivor:
I suffer from DID and
bipolar
disorder and work and manage to survive, although I am
suicidal a lot. My biggest emotional
pain is an alter that is destroying relationships I have with people. Now I
have no friends. I don't know how to reason with her anymore. Any
suggestions?
Dr. Noblitt:
It would be helpful to understand the alter's motivation. Some
alters destroy relationships because they fear closeness with others,
sometimes because they were betrayed in a close relationship. That particular
alter will need to work in therapy to resolve her fear of vulnerability and to
develop better interpersonal skills.
jjjamms: I
am highly functional when it comes to working - it's the interpersonal
relationships that are hard. How does one reach out with DID? It's very
isolating.
Dr. Noblitt:
There is no easy answer to this dilemma. It takes much effort and
work to overcome. I would encourage you to bring this up with your therapist.
Together, you may be able to formulate a specific plan for expanding your
social life.
Different approaches seem to work for different
people. Some individuals develop a sense of closeness with others in a support
group (although this does not work for everyone). Some people can make social
contacts through a church or synagogue. Sometimes it is possible to develop
social relationships at work.
This is a very important goal and I wish you
luck in achieving it. Most individuals with DID who expand their social network
soon notice improvements in their mood and quality of life. It is difficult to
change one's lifestyle when one has been living like a recluse for years, but I
have known people who have succeeded through their perseverance.
eveinaustralia:
I live in Australia and I have been refused talk therapy because I
stopped taking the Psychiatrist's drugs (my significant other and I thought
they were making me worse). Do you believe that MPD people have to take drugs
and that it's okay to refuse therapy without them? Also, why are the drugs so
important to MPD people?
Dr. Noblitt:
I believe in the patient's right to choose aspects of therapy that
are helpful and reject those that they feel are not helpful. I do not think
that therapists should require that their patients take medications unless such
medications treat a life threatening condition (such as HIV).
I believe no patient, DID or otherwise, should
be forced to take psychoactive medications without their consent.
David: If
you haven't been on the main HealthyPlace.com site yet, I invite you to take a
look. There are over 9000 pages of content.
http://www.healthyplace.com
HealthyPlace.com is broken down into
different communities. And so some of the questions about
depression, for instance, can be answered by the reading through the sites and
"conf. transcripts" in the
Depression Community.
We also have a very large
self injury community.
Between the sites and the "conf.
transcripts," you will find a lot of information on almost every mental
health topic.
We have a few more questions, then we'll call it
a night.
katerinathepoet:
Hello Dr. Noblitt, I have had Multiple Personality Disorder most of
my life. I was wondering how I can
get my husband to
understand MPD. He is not comfortable with me and doesn't understand it
all. We do not have enough money for therapy, so any suggestions on how to get
him to understand my MPD?
Dr. Noblitt:
You might consider contacting the Sidran Foundation for literature
that can explain your condition to him. You might also want to explore
possibilities of obtaining Medicaid, Medicare, or some other form of subsidized
funding for treatment. You can also consider pastoral counseling with a
therapist skilled in DID issues.
sherry09:
What do you do when the children are screaming in your head because
they are still in the past?
Dr. Noblitt:
This problem falls within the realm of developing self-soothing and
grounding skills. Sometimes
self-talk can be helpful, reminding them that they are not
in any danger at the present time, letting them observe their present
environment. Other
soothing and
calming strategies can be helpful as well.
David:
Here's the flip side to katherinathepoet's question about getting
her SO to understand her DID:
Temper: I am
an SO (significant other), and on one of my support lists we have been talking
about the role of an SO. What role do you see an SO having in therapy and
outside. What can a
significant other do to help their DID partner (specifically, they were
talking about messing with internal politics, rescuing alters, and instigating
system changes)?
Dr. Noblitt:
The role of the significant other is probably the primary social
support for the individual with DID. The most important thing about this role
is maintaining a healthy relationship where the individual with DID can learn
to trust and to give and accept unconditional love.
The significant other can help the individual
with DID by being supportive and responsive. He or she should never take
advantage of the relationship or use the DID's vulnerability to jockey for a
power position. There should be boundaries established in the relationship to
distinguish between a healthy partnership and a therapeutic
relationship.
Maera: What
do you think about
EMDR
treatment for DID?
Dr. Noblitt:
I believe that EMDR methods effectively access dissociated mental
states, for some individuals, not all. I think we should learn more about how
and why EMDR causes these particular effects. Hopefully, all of us are
interested in the effectiveness of the method, not the particular theory behind
it.
MomofPhive:
Why don't all individuals with DID achieve the goal of integration?
Is it that some aren't able to or choose to and why not?
Dr. Noblitt:
I don't think that anyone really knows the answer to this question.
Many therapists assume that the individual has not been able to heal the
effects of trauma or that the individual does not want to say goodbye to their
alternates.
SoulWind: Is
it possible to recover and function in a normal way without dealing with ALL of
the repressed
memories and the accompanying
flashbacks?
Dr. Noblitt:
Again, I don't think anyone knows for sure. However, I assume that
patients need to deal with the flashbacks but do not necessarily have to deal
with every memory that may be hidden from their conscious awareness.
Individuals with DID need to have enough insight into these memories, however,
to understand the gist of what happened to them, why they have alternates, and
why their alternates behave and feel as they do.
David: Thank
you, Dr. Noblitt, for being our guest tonight and for sharing this information
with us. We especially appreciate that you stayed late to answer many of the
audience questions. And to those in the audience, thank you for coming and
participating. I hope you found it helpful. We have a very large and active
community here at HealthyPlace.com. You will always find people in the
chatrooms and
interacting with various sites. Also, if you found our site beneficial, I hope
you'll pass our URL around to your friends, mail list buddies, and others.
http://www.healthyplace.com
Thanks again, Dr. Noblitt.
Dr. Noblitt:
My pleasure, David.
David: Good
night everyone.
Disclaimer: We are not
recommending or endorsing any of the suggestions of our guest. In fact, we
strongly encourage you to talk over any therapies, remedies or suggestions with
your doctor BEFORE you implement them or make any changes in your
treatment.
We hold topical mental health chat conferences
every Wed. and Thurs. nights. The schedule, and transcripts from previous
chats, are here.
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