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Getting Well From Depression
and Manic Depression
continued
After the experience with lithium toxicity, my
body didn't seem to want it anymore. Every time I tried to take it, the
symptoms of toxicity returned. And without it, those
deep dark depressions and
periods of high achievement returned. Only now they were overwhelming. The
depressions were dark and
suicidal. The mania was totally out of control. Psychosis became a way of
life. I lost my job. Friends and family members backed off. I spent months on
the psychiatric ward. My life felt like it was slipping away. They tried one
drug after another, usually several at a time. Nothing seemed to bring me back
to life.
Through the haze, I was searching for answers.
I wondered how other people with these kinds of episodes get by. They couldn't
all be like me-unable to work and almost unable to take care of myself. I asked
my doctor how people
with manic depression get by on a day-by-day basis. He told me he'd get me
that information. I looked forward to my next visit with great anticipation,
fully expecting to find some answers. What a disappointment! He said that there
was information on medication, hospitalization and restraint but nothing on how
people live their lives.
I took this dilemma to my vocational
rehabilitation counselor who was trying desperately to find a place in the
world for this mentally ill woman. I described to her a dream. A dream of
finding out how others with depression and manic depression keep themselves stable. To
my surprise she supported my ideas. With her as my back-up and the help of a
Social Security PASS plan, I began a study of 120 people who agreed to share
their strategies for keeping themselves.
As information started coming in, my foggy
brain got scared. How was I going to compile this data and put it into any kind
of format that could be useful to me and others like me? I kept plugging away.
The information was so fascinating that I was drawn to it. Once again, I had
something meaningful to do. I think my return to wellness may have started
there.
The first and most important thing I learned
from compiling this data was that there is lots of HOPE. Contrary to popular
belief, people with recurring episodes of depression and manic depression, get
well, they stay well for long periods of time and they do what they want to
with their lives. This message of hope, which I had never heard, must be spread
by all of us who know it is true.
I soon became aware of a clear difference in
responses from study participants. Some people were blaming their instability
on everyone else. "If only my parents hadn't.....", "if only my
doctor would try.....", "if only my fourth grade teacher
had.....", etc..
Mood
instability was controlling these people's lives. Others were taking
responsibility for their own lives, advocating for themselves, educating
themselves, getting the
support they need, etc., These people were getting well and staying well.
You can bet I made an about face at that point and joined the ranks of people
taking responsibility for themselves as fast as my brain could adapt. That was
the first giant step on my way back to life.
Then I learned from these people who had so
much knowledge to share, that I had to advocate for myself, no matter how
difficult that might seem for someone with wildly oscillating moods and self
esteem in the basement. I began thinking about what I wanted for myself in
terms of treatment, housing, relationships, support, work and activities. Then
I figured out strategies to make these things happen and went for it. Things
began to change in my life and they continue to change. My life gets better and
better.
As many others have done, but I hadn't, I began
to educate myself. I read everything I could about
depression,
manic depression,
medications, and
alternative treatments. I contacted national, state and
local organizations for help in this process. I told my health care
professionals what I wanted and expected from them rather than depending on
them to make decisions for me. I began to take better care of myself. I
developed a plan that instructed certain people to make decisions for me in the
event that I couldn't make them for myself, and told them how I wanted to be
treated in these circumstances.
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