Kathryn Cohan My Perspective:
Looking Through The Self-Help Lens
What fails to be understood time and time again by people on the outside of the
experience of having a psychiatric label, is that the experience of being a person who has
mood swings, fear, voices and visions ("Person Who") has made me culturally
distinct.
Opportunities for coming together, like internet discussion lists and face-to-face groups,
dedicated to understanding this experience among peers, have provided for me the best
forum for making meaning of the experience. Cross-diagnosis self-help in any form has been
a vehicle for putting words around these unique experiences, and has helped define for me
the parameters for a whole new cultural perspective.
It has been my experience that "Person Who", or peer, culture is very different
from what conventional wisdom holds to be "the norm". In peer, or mutual
support, culture an acute self-awareness is valued, rather than dismissed as navel-gazing.
In mutual support culture, unmasking and showing one's true self is valued, rather than
reviled and discouraged. In mutual support culture, we are bound together by experiences
that, while they are highly individual, have more in common than not.
I am convinced at this point that our labels are dangerous, not only to us as individuals
but as a collective cultural entity. They serve to keep us divided, breaking down a
universal experience among peers into tiny camps of this or that - isolated by category.
While diagnostics, done correctly, may be helpful to begin the journey of understanding
and organizing a set of experiences, they serve no purpose at all when it comes to
actually living with the label.
The beauty of the self-help approach for me is that this is how I've managed to make sense
of my life - in the context of a diverse culture comprised of people who have also
made/are making a similar journey. It is my belief that psychiatric self-help needs to be
pushed along to the next level in its evolution; it needs to do exactly what it is
demanding of the larger mental health system. Self-help must become more inclusive.
Groups that focus on a specific "disorder" are of limited use when it comes to
the larger work of developing a consensus voice; a sorely needed voice for the work of
improving and developing caring and competent systems.
Cross-diagnosis self-help has the capacity to provide a different lens through which
unique and diverse experiences can be understood. This cultural perspective includes the
notion that the experience of mood swings, fears, voices and visions has value in other
social contexts. Visioners and waking dreamers, seers and shamen hold places of honor in
different cultural systems and in different times. When I am called upon to train
providers and outsiders in consumer perspectives on the mental health system, I always
start by telling the truth.
And the truth is that if we lived in a different time (or perhaps a different place) those
in attendance would be bringing me chickens, asking for my advice, and following it!
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[Who am
I now?] [Strategies for Self-Determination] [Talking
Points]
[Inner
Science] [The
Hard Questions] [Provider
Psychopathologies]
[Inviting
In The Wolf] [Recovering
Self Esteem] [The ECT
Suite]
[Consumer
Satisfaction Surveys] [The
Therapeutic Value of Cyberspace]
[The
Self-Help Lens] [The
Language Barrier] [Waves
of Change]
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© 1999, 2000 Kathryn Cohan
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